FSHD University: Pediatric Respiratory Monitoring and FSHD

Thursday, September 17 at 1:00 pm ET

Presenter: Natalie Katz, MD, PhD & Mai Elmallah, MD, Duke University

Respiratory challenges in FSHD often develop gradually and can be missed, especially in children. Join Dr. Natalie Katz, MD, PhD, and pediatric pulmonologist Dr. Mai ElMallah, who together run a specialized Pediatric Neuromuscular clinic and conduct research on improving detection of respiratory dysfunction in pediatric FSHD. In this webinar, learn why respiratory monitoring matters, what signs to watch for, when to seek specialist care, and how to advocate for your child’s breathing health as part of their overall FSHD care plan. Whether you’re a parent, caregiver, or young person with FSHD, discover practical strategies and essential knowledge that can help your child receive the respiratory support they need and deserve.