Zoom Web Conference

Join us for a special FSHD University town hall where the community can connect directly with Dr. Lucienne Ronco, Chief Science Officer of the FSHD Society, for an open conversation about the science of FSHD. This interactive session is your opportunity to ask questions about the biology of FSHD, the latest research developments, emerging therapeutic […]

Thursday, June 18th at 1:00 pm ET Presenter: Loralei L. Thornburg, MD, University of Rochester Medical Center This session explores key women’s health topics in FSHD, including family planning and reproductive considerations, while highlighting guidance from the updated FSHD clinical care guidelines. Participants will gain insight into how care recommendations can support health, planning, and […]