Apr
14
Webinar on preparing for the Voice of the Patient Forum
Our webinar will prepare you for the Voice of the Patient Forum on April 21. The webinar is noon-1:00 pm ET | 11:00 am-noon CT | 10:00-11:00 am MT | 9:00-10:00 am PT. The Forum is the FSHD Community’s platform to present testimony by patients and family caregivers and educate the FDA on how FSHD has impacted your life or the life of your loved ones. Your input will result in a Voice of the Patient Report that will be…
Find out more »Jun
3
Webinar on stem cell research with Dr. Rita Perlingeiro
Dr. Rita Perlingeiro is Associate Professor of Medicine within the Lillehei Heart Institute at the University of Minnesota. Her primary research interests include understanding the molecular mechanisms controlling lineage-specific differentiation of pluripotent stem cells, and applying this information to efficiently generate tissue-specific stem/progenitor cells endowed with in vivo regenerative potential. Her work has potential applications in muscular dystrophy research and future therapies. She has received several awards and honors and has served as an expert reviewer and publisher for several…
Find out more »Aug
5
Webinar on scapular stabilization surgery
Dr. Anthony Romeo Join us for our webinar on scapular stabilization surgery at noon ET | 11:00 am CT | 10:00 am MT | 9:00 am PT. One of the classic symptoms of FSHD is "scapular winging." The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel's wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works for some patients is surgery…
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