Remembering Dan Perez, co-founder of the FSHD Society and a driving force in FSHD research and advocacy.
Reschedule to Thursday, December ber 11 | 1:00 PM ET Webinar Presenters: Dr. Lucienne Ronco, PhD, FSHD Society Dr. Lawrence Hayward, UMass Chan Medical School Dr. Wes Miller, Epicrispr This FSHD University webinar will take a closer look at how gene therapy is being developed to target the root cause of FSHD. Our presenters will […]
2025 Annual Drug Development Update Presenter: Dr. Lawrence Korngut Join us for our final FSHD University webinar of 2025 as we take a deep dive into the latest progress in FSHD drug development. Dr. Lawrence Korngut, Associate Professor of Neurology and Clinical Neurosciences at the University of Calgary, will provide an up-to-date overview of ongoing […]
Mind-Body Connection: Using Mindfulness and Relaxation Techniques to Improve Well-being Presenter: Sixto Garcia, M.A. LMFT Start the new year with tools to support your emotional and physical health. Join us on January 15, 2026, for an engaging FSHD University webinar with Sixto Garcia, M.A., LMFT, as he explores the powerful connection between the mind and […]
Staying Active with FSHD – Live Q&A on Exercise and Movement Presenter: Feeling Fit Instructors, Frank Hanley, Kathy Senecal, Donna Russo, Ranae Beeker Living with FSHD can make staying active challenging, and many patients and caregivers wonder which exercises are safe, effective, and sustainable. In this special FSHD U webinar, our expert Feeling Fit facilitators […]
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