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Young Adults – Trial readiness

Event Series Event Series: Young Professionals

Aug 19 @ 8:00 pm - 9:00 pm

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT

We’re excited to learn that Avidity will begin recruiting for Cohort C of its clinical trial this fall, and Cohort D sometime in early 2025. So it’s timely to learn about how to become “trial ready” at the individual level. While there are many hoops to jump through to get into a clinical trial, some of these hoops are ones that you can take on yourself ahead of time. This can help improve your chances of being accepted… and if not the Avidity trial, one of the many that are coming in the next few years. Leann Lewis, study coordinator at the University of Rochester, and June Kinoshita, Senior Director of Research and Education at the FSHD Society, will discuss this topic and answer your questions.

FSHD Young Professionals is a social and support group focused on encouraging and empowering young adults impacted by FSHD. We created this space specifically for younger FSHDers to connect, collaborate, and provide networking opportunities. Whether you’re just graduating, starting a new position, or already on a career track, the FSHD Young Professionals group will help you develop a valuable network of friends facing similar challenges.

Our group is hosted and facilitated by volunteers who are excited to connect with you. We meet twice a month via Zoom. One will focus on hearing from a professional on a focused topic, with time for Q&A/discussion; the other will a social hour with a focus on conversation, connection, and fun. Join both meetings or just one, as your schedule allows.

Mark your calendar for the third Monday at 8pm ET/5pm PT. Once you join the group, no need to register again; you will be sent regular reminders and the Zoom link.

You can also join the conversation on Discord.

To contact us directly, please email: youngprofessionals@fshdsociety.org.



Aug 19
8:00 pm - 9:00 pm
Event Categories:
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Zoom Virtual Meeting
United States


FSHD Society
(781) 301-6060
View Organizer Website