Our look is new. Our purpose is the same. Learn more about our brand evolution.
Hot off the press, here’s our updated Physical Therapy brochure! Co-written by leading FSHD experts Katy Eichinger, PhD, Shree Pandya, PT, DPT, MS, and Wendy King, PT, the brochure provides […]
[…] person or participating virtually, every step you take brings us closer to a cure for FSHD. From now through event day, we’re celebrating the power of individual action—because every fundraiser, […]
FSHD brings with it several important health issues, We’re here to help you learn and understand more. In addition to the information below, follow our blog for regular updates […]
On May 9th, 2025, the FSHD Society hosted an Adjunct Scientific Workshop. After the meeting, the report and recording will be posted here. An Adjunct Scientific Workshop brings together key […]
Are you ready to advocate for the FSHD community? We need your voice to help influence hearts and minds! By working together, we can make sure that our elected officials, […]
