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Frank Kolakowski and Manuel Gomez, FSHD advocates extraordinaire, were on hand to represent FSH muscular dystrophy at this year’s National Institutes of Health Rare Disease Day event. Thank you!
[…] agree with? The general thought in the past is that strength training was harmful for FSHD—that is not the case now. Moderate-intensity strength and aerobic exercises have been found to […]
[…] thing to consider is that, depending on the degree of weakness of a person with FSHD, some muscles may be working or exercising to their maximum just to perform everyday […]
[…] common household material keeps my feet from slipping  by Bill Maclean, Blue Bell, Pennsylvania As FSHD progresses, many find that standing up becomes more difficult. As a result, one must […]
[…] FSH Society, an organization that has dedicated its entire existence to a better life for FSHD families. I feel humbled to receive this recognition, proud of my excellent team of […]
