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Dan Perez’s fierce advocacy will advance knowledge and extend the lives of people with FSHD Breathing complications in FSHD can be deadly, but with the lion’s share of research focused […]
[…] at the University of Massachusetts Medical School (UMMS) seek individuals with facioscapulohumeral muscular dystrophy ( FSHD) to participate in an FSHD Biomarker Study. This will be conducted by Dr. Robert […]
[…] and EU regulatory agencies Trial expected to begin in 2Q 2022 Potential first-to-market therapy for FSHD Fulcrum to host virtual Key Opinion Leader webcast on FSHD on March 24 at […]
[…] FSH Society will host its new signature fundraising event, the Walk & Roll to Cure FSHD in five communities from coast to coast.  These Volunteer Leaders are paving the way for their […]
[…] University of Rochester, New York, and lead author of the first evidence-based care guideline for FSHD, a project the FSH Society supported through consultations and advocacy. Summaries of the guideline […]
