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[…] of those with disabilities, not even to demonstrate the true strength one can have with FSHD. I had to do this to prove to myself that if I can find […]
[…] Katz, MD, and Katy de Valle, research physical therapist More than 50% of people with FSHD develop symptoms as children or teens. When treatments to slow or stop FSHD are […]
[…] stories. Amy Bekier, San Diego chapter director From my perspective as a volunteer leader, the FSHD Society’s Volunteer Leadership Summit is one of the most important gatherings of the year. […]
[…] coax cells to develop into muscle by Fred Thys, Weymouth, Massachusetts Neil Camarta, who has FSHD and founded the FSHD Canada Foundation, discovered that there is something called muscle regeneration […]
Know the difference by Amanda Hill, FSHD Society In your journey with FSHD, you’ve probably heard about the importance of seeing your doctor regularly. You also most likely have heard […]
