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The recent national election, bringing in a new Administration, raises questions and concerns about the future of laws and programs of interest to researchers, patients and caregivers dealing with FSHD. […]
Take the survey now! Click here. The FSH Society is participating in an international workshop on FSHD patient registries later this week. We would like to share the patient and family perspective on […]
Produced for the FSH Society’s 25th anniversary, our new documentary tells the story of how the Society’s work has led to the discovery of the genetic cause of facioscapulohumeral muscular dystrophy […]
The program agendas for our FSHD Connect conferences are now available to download. Please click on the links provided below. We thank our generous sponsors for their support! FSHD Research […]
On Sunday, October 30th, Griff Entertainment will provide the first-ever livestream for the FSH Society’s second annual Ghostly Gala to Vanish FSHD. The gala will be held at the Cicada […]
