Our look is new. Our purpose is the same. Learn more about our brand evolution.
We’re excited to announce that YOU could join Debby Ryan for a self-care day in Los Angeles! Flights and hotel are included, plus donations to win benefit our work here […]
The FSH Society connects patients like Katie Ruekert to a community of support so no one has to face this disease alone. We also work closely with thought leaders like […]
You inspire me! You have faithfully supported, worked, and engaged your network and loved ones to join our quest for treatments and a cure for FSHD. I want to acknowledge […]
In this interview, Dr. Jeffery Statland of the University of Kansas Medical Center explains how FSH Society funding seeded the creation of the seven-site Clinical Trial Research Network (CTRN), which […]
Watch what happens with this famous Dutch comedian performs before an audience of people with facioscapulohumeral muscular dystrophy. Did you notice confidence and determination of these patients and families, boldly […]
