In this interview, Dr. Jeffery Statland of the University of Kansas Medical Center explains how FSH Society funding seeded the creation of the seven-site Clinical Trial Research Network (CTRN), which in turn led to the largest clinical trial preparedness study that has ever been run in the United States.
We have entered a convergence zone―a “tipping point”―of activity in our field. Researchers confirm the time to step up our game is NOW! More pharmaceutical companies are working to find solutions, the global FSHD environment has deepened with new discoveries, and, through your continued support, we are funding cutting-edge research to continue the pipeline of potential therapies.
The entire FSHD community must ask ourselves the questions, If not us―who? If not now―when?
Our Board of Directors has pledged $370,000 to the 2017 Campaign, and challenges you to match it, dollar for dollar. Make your gift before 11:59 p.m. on December 31, 2017, to have it count toward the challenge.