Our look is new. Our purpose is the same. Learn more about our brand evolution.
Big news! We’ve teamed up with the online fundraising platform Omaze to give you the chance to meet Dan Levy, of Schitt’s Creek. Dan is the co-creator and star of […]
The nation’s capital will host the world’s premier conferences on facioscapulohumeral muscular dystrophy for all stakeholders. REGISTER HERE. The FSHD Society’s 27th annual International Research Congress (IRC) will be held […]
Join us for the first-ever FSHD Family Day Conference to grace the shores of Lake Michigan. Join family, friends, and fellow travelers living with FSH muscular dystrophy for a wonderful […]
For our next webinar on August 10, at 2 p.m. EST, Charis Himeda, PhD, of the University of Nevada Reno will discuss her pioneering work to show how CRISPR gene-editing […]
Since its launch last year, our national chapter program has grown by leaps and bounds. We now have 25 chapters in 18 states! Check out the map above and visit […]
