Have you thought about what you can do in your own backyard to serve FSHD patients and families in your community and advocate for greater awareness and resources to develop… Read More »
How to launch your own chapter or Walk & Roll [VIDEO]
A surprise $50K gift
From a simple act of kindness When Jim Chin, chair of the FSH Society board of directors, donated funds for travel scholarships so that 20 patients could attend our 2018… Read More »
$100,000 matching gift challenge!
The time to act is now If we deliver on our promise to have therapies to our families by 2025, it will be because of your donation today. With your… Read More »
Organizing a Walk & Roll ā if I can do it, so can you!
by Susan Aumiller, Powell, Ohio Last year, soon after my son and husband were diagnosed with FSHD, I called the FSH Society and said Iād like to organize a fundraiser…. Read More »
Gear up for World FSHD Day 2019!
Sharpen your orange slicers and polish your selfie sticks! World FSHD Day is on June 20th and you can help us turn social media world orange on that day by… Read More »