A few years ago, James Partridge, a long-time FSHD Society member, decided to re-boot his career and pursue his passion for the blues. His home city of Ann Arbor, Michigan,… Read More »
Legendary festival to support FSHD Society
TikTok to participate in World FSHD Day
TikTok, the video-sharing app formerly known as musical.ly, is the world’s fastest growing social networking platform. This year, TikTok is participating in World FSHD Day on June 20th. The relationship… Read More »
How to launch your own chapter or Walk & Roll [VIDEO]
Have you thought about what you can do in your own backyard to serve FSHD patients and families in your community and advocate for greater awareness and resources to develop… Read More »
A surprise $50K gift
From a simple act of kindness When Jim Chin, chair of the FSH Society board of directors, donated funds for travel scholarships so that 20 patients could attend our 2018… Read More »
$100,000 matching gift challenge!
The time to act is now If we deliver on our promise to have therapies to our families by 2025, it will be because of your donation today. With your… Read More »