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The time to act is now If we deliver on our promise to have therapies to our families by 2025, it will be because of your donation today. With your […]
by Susan Aumiller, Powell, Ohio Last year, soon after my son and husband were diagnosed with FSHD, I called the FSH Society and said I’d like to organize a fundraiser. […]
Sharpen your orange slicers and polish your selfie sticks! World FSHD Day is on June 20th and you can help us turn social media world orange on that day by […]
Here are the agenda, speaker biographies, and presentation materials from our Miami FSHD Family Day Conference, which was held on Saturday, February 23, 2019, at the beautiful Newman Alumni Center […]
Register here! Join us on Sunday, April 28, for our Bay Area FSHD Family Day conference. It will be held from 1:00-6:00 pm at the beautiful Li Ka Shing Center […]
