Our 2018 Ghostly Gala, held on October 21 at Los Angeles’ fabled Cicada Club, raised awareness and funds for FSH muscular dystrophy. This year’s theme was comedy, laughing for a… Read More »
Ghostly Gala laughter for a cure
The future is in powerful hands: YOURS
“I have been impressed with the urgency of doing. Knowing is not enough. We must apply. Being willing is not enough. We must do.”―Leonardo da Vinci Throughout 2018, we have made… Read More »
Mid-Atlantic FSHD Family Day presentations
Attendees at our FSHD Family Day conference in Baltimore this past Sunday enjoyed an excellent series of talks by the clinicians and researchers at the Kennedy Krieger Institute. Here are… Read More »
It’s enrollment time for Combined Federal Campaign
Anyone employed by the federal government can make donations to the FSH Society through the Combined Federal Campaign. Please encourage family and friends who qualify to include the FSH Society… Read More »
Announcing our St. Louis chapter
We are proud to announce our newest chapter of the FSH Society, in St. Louis, MO. Big thank you to Marsha Sverdrup for stepping up as our chapter director. We… Read More »