The FSHD Society announced today that the U.S. Food and Drug Administration (FDA) has approved its application to hold an externally led Patient-Focused Drug Development (EL-PFDD) meeting on facioscapulohumeral muscular dystrophy. This “voice of the patient” meeting, a key component of the Society’s Therapeutic Accelerator initiative, has been scheduled for April 21, 2020, in College… Read More »
Patient-Focused Drug Development Meeting for FSHD
FSHD Society Announces 2020 Conferences
The nation’s capital will host the world’s premier conferences on facioscapulohumeral muscular dystrophy for all stakeholders The FSHD Society’s 27th annual International Research Congress (IRC) will be held on June 25-26, 2020, at the Washington Hilton in Washington, DC. It will be followed on June 27-28 by FSHD Connect, the Society’s biennial global conference bringing… Read More »
Tim Hollenback on Milwaukee’s PBS
We are so excited and proud to see Tim Hollenback, host of the FSHD Society talk radio show, featured by Milwaukee’s 10thirtysix news program last night. In this segment, we get a glimpse of Tim’s life as a Little League baseball coach, exhorting his team to “play fearless,” and also get to see him hosting… Read More »
FSHD Society Announces 2020 Conferences
From Yahoo News The nation’s capital will host the world’s premier conferences on facioscapulohumeral muscular dystrophy for all stakeholders The FSHD Society announced today that its 27th annual International Research Congress (IRC) will be held on June 25-26, 2020, at the Washington Hilton in Washington, DC. It will be followed on June 27-28 by FSHD… Read More »
FSHD Society signs agreement to expand CTRN
From PRWeb The FSHD Society announced today that it has signed a memorandum of understanding to enter into a three-year agreement to enable the expansion of the international facioscapulohumeral muscular dystrophy (FSHD) Clinical Trial Research Network (CTRN). FSHD is a hereditary muscle-damaging condition that affects an estimated one out of 8,000 people, or nearly one million men, women,… Read More »