In this year of unprecedented upheaval and uncertainty, you may wonder if you can continue to support your favorite cause (the FSHD Society!) with your yearly gift. Instead, consider becoming a Torch Bearer – by joining our newly named monthly giving program! By making a small monthly gift, in an amount that you’re comfortable donating… Read More »
Have a bigger impact than ever
We Heard Your Voice
by June Kinoshita, FSHD Society On June 29, 2020, the FSHD Society convened its landmark Voice of the Patient Forum. Patients and family members testified by livestream and email to educate the FDA on how FSHD has impacted their lives. More than 600 people responded to our surveys and provided statements which have been compiled… Read More »
A success for the virtual 2020 International Research Congress
by Jamshid Arjomand, PhD, Chief Science Officer, FSHD Society Our original plan for 2020 was to host the International Research Congress (IRC) in Washington, DC, in proximity to the FDA and the National Institutes of Health. The US capital (in an election year, no less!) would have provided an additional level of excitement to researchers… Read More »
Glee star is Walk & Roll national ambassador
The FSHD Society announced today that Max Adler, an actor best known for his roles on the hit series “Glee,” available for streaming on Netflix, and “Switched at Birth”, is serving as this year’s national ambassador for the Society’s signature fundraiser, Walk & Roll to Cure FSHD, taking place September 12. There are currently no… Read More »
2020 Young Investigator Awards
The FSHD Society is proud to announce that three highly deserving individuals are each being given a Young Investigator Award for 2020. This award recognizes junior researchers who show exceptional promise and are likely to have a significant impact on the FSHD field. Meet the winners! Angela Lek, PhD, Associate Research Scientist, Yale University Angela… Read More »