Los Angeles Virtual Chapter Meeting

Zoom Virtual Meeting , United States

Los Angeles Virtual Chapter Meeting Wednesday, August 7th | 6:00 - 7:00 pm PT Join us on Wednesday, August 7th from 6:00 pm - 7:00 pm for our upcoming virtual […]

Atlanta Chapter Virtual Meeting: Walk & Roll Prep

Zoom Virtual Meeting , United States

Atlanta Chapter Virtual Meeting: Walk & Roll Prep Monday, August 19th, 5:30-6:30pm ET Join our virtual meeting for a group brainstorm and discussion on how we can make the 2024 […]

St. Louis Chapter In-Person Support Meeting

Webster Groves Public Library - 301 E Lockwood Ave, Webster Groves, MO 63119 East Lockwood Avenue, St. Louis, MO, United States

St. Louis Chapter In-Person Support Meeting Tuesday, August 20th, 2024, 7:00-8:00pm CT Webster Groves Public Library - 301 E Lockwood Ave, Webster Groves, MO 63119 We invite all of our […]

Dakotas Chapter Meeting

12:00-2:00pm ET | 11:00am-1:00pm CT | 10:00am-12:00pm MT | 9:00am-11:00am PT Dakotas Chapter Meeting Saturday, August 24, 2024 Location: TBD Restaurant Join the Dakotas Chapter for a special community lunch […]

Virginia Chapter Social Event: Norfolk Tides vs. Worcester Red Sox

Harbor Park Stadium, 150 Park Ave, Norfolk, VA 23510 Park Avenue, Norfolk, VA, United States

Virginia Chapter Social Event: Norfolk Tides vs. Worcester Red Sox Saturday, August 24, 2024 at 6:00pm Harbor Park Stadium, 150 Park Ave, Norfolk, VA 23510 Please join us on August […]

Southeast Multi-Chapter Virtual Meeting

Southeast Multi-Chapter Virtual Meeting Tuesday, August 27, 2024 at 6:00pm ET Amy Halseth and Erika Escartin from Avidity Biosciences will give a short presentation on the recent data from FORTITUDE, […]

Western PA Chapter Drum & Roll Prep Virtual Meeting

Zoom Virtual Meeting , United States

Western PA Chapter Drum & Roll Prep Virtual Meeting Thursday, August 29, 2024 7:00-8:30pm ET RSVP here: go.fshdsociety.org/l/701273/2023-05-09/439tq1 Join our virtual meeting for a discussion on how we can make […]

2024 Sacramento Walk & Roll to Cure FSHD

California State Capitol 1315 10th St, Sacramento, CA 95814 1315 10th St, Sacramento, CA, United States

2024 Sacramento Walk & Roll to Cure FSHD Saturday, September 7, 2024 Registration opens at 9:00am, the Walk starts at 10:00am California State Capitol: 1315 10th St, Sacramento, CA 95814 […]

2024 Colorado Walk & Roll to Cure FSHD

Philip S. Miller Park - Amphitheater 1375 E Plum Creek Pkwy, Castle Rock, CO, United States

2024 Colorado Walk & Roll to Cure FSHD Sunday, September 8, 2024 Check In begins at 8:00am and the Walk begins promptly at 9:00am Phillip S. Miller Park - Amphitheater, […]

New England Virtual Chapter Meeting

New England Virtual Chapter Meeting Thursday, September 12, 2024 at 7:00 PM Meeting Agenda: Walk Leader, Lexi Pappas, will briefly talk about the Walk & Roll taking place on 9/22 […]

2024 Columbus Walk & Roll to Cure FSHD

Coffman Park Pavillion 5200 Emerald Pkwy, Dublin, OH, United States

2024 Columbus Walk & Roll to Cure FSHD Saturday, September 14, 2024, 10:00am at Coffmann Park Pavilion Register to “walk or roll” today! Invite your family, friends, club members, neighbors, […]

2024 Utah/Intermountain Walk & Roll to Cure FSHD

Canyon Rim Park East Pavillion 3100 S Grace Street, Millcreek, UT, United States

2024 Utah/Intermountain Walk & Roll to Cure FSHD Saturday, September 14, 2024, 3:00-5:00pm Canyon Rim Park - East Pavilion, Millcreek, Utah Register to “walk or roll” today! Invite your family, […]

2024 Ontario Walk & Roll to Cure FSHD

LAKE AQUITAINE PARK, Mississauga, Ontario 6655 GLEN ERIN DR, Mississauga, Ontario, Canada

2024 Ontario Walk & Roll to Cure FSHD Saturday, September 14, 2024, 9:00am Lake Aquitaine Park, Mississauga, ON Register to “walk or roll” today! Invite your family, friends, club members, […]

2024 Idaho/Intermountain Walk & Roll to Cure FSHD

Canyon Rim Park East Pavillion 3100 S Grace Street, Millcreek, UT, United States

2024 Idaho/Intermountain Walk & Roll to Cure FSHD Saturday, September 14, 2024, 10:00am Canyon Rim Park – East Pavilion, Millcreek, Utah Register to “walk or roll” today! Invite your family, […]

2024 Kansas City Walk & Roll to Cure FSHD

Shawnee Mission Park, 7900 Renner Rd., Shawnee Mission, KS 66219 Renner Road, Lenexa, KS, United States

2024 Kansas City Walk & Roll to Cure FSHD Saturday, September 14, 2024 Check-in begins at 10:00am, walk begins at 11:00am Location: Shawnee Mission Park, Shelter 5 Register to “walk […]

2024 StL Walk & Roll to Cure FSHD

Hawk Ridge Park 8392 Orf Road, Lake St. Louis, MO, United States

2024 StL Walk & Roll to Cure FSHD Saturday, September 14, 2024 Memorial Park * Pavillion 1, 8600 Strassner Dr, Brentwood, MO 63144 Register to “walk or roll” today! Invite […]

Virtual Screening: Good Bad Things

Virtual TX, United States

Virtual Screening: Good Bad Things Missed seeing Good Bad Things in theaters? Get your tickets for a virtual screening this weekend. The film will be available from 6:00pm PST on […]

2024 Mid-Atlantic Walk & Roll to Cure FSHD

Alpha Ridge Park 11685 Old Frederick Rd, Marriottsville, MD, United States

2024 Mid-Atlantic Walk & Roll to Cure FSHD Saturday, September 21, 2024, Registration opens at 10:30am Alpha Ridge Park, Marriotsville, MD Register to “walk or roll” today! Invite your family, […]

2024 San Diego Walk & Roll to Cure FSHD

Harbor Island Park 1875 Harbor Island Dr., San Diego, CA, United States

2024 San Diego Walk & Roll to Cure FSHD Saturday, September 21, 2024, 8:30am Harbor Island Park, San Diego, CA Register to “walk or roll” today! Invite your family, friends, […]

2024 Michigan Walk & Roll to Cure FSHD

Mulligan's Hollow Lodge 600 Y Drive, Grand Haven, MI, United States

2024 Michigan Walk & Roll to Cure FSHD Sunday, September 22, 2024 Registration starts at 9:00am and the Walk starts at 9:30am Mulligan's Hollow Lodge - 600 Y Drive, Grand […]

2024 New England Walk & Roll to Cure FSHD

Larz Anderson Park, 25 Newton St, Brookline, MA 02445 Newton Street, Brookline, MA, United States

2024 New England Walk & Roll to Cure FSHD Sunday, September 22, 2024 Check-in at 10:00am, Walk starts at 10:30am Larz Anderson Park, 25 Newton St, Brookline, MA 02445 Register […]

2024 Minnesota Walk & Roll to Cure FSHD

Normandale Lake Bandshell, 5901 West 84th Street, Bloomington, MN West 84th Street, Bloomington, MN, United States

2024 Minnesota Walk & Roll to Cure FSHD Sunday, September 22, 2024 Location: Normandale Lake Bandshell, 5901 West 84th Street, Bloomington, MN Register to “walk or roll” today! Invite your […]

Virginia Chapter Monthly Virtual Meeting

Zoom Virtual Meeting , United States

Virginia Chapter Monthly Virtual Meeting Tuesday, September 24th, 6:00pm ET Please join us for this casual, conversational monthly meeting. We look forward to catching up with everyone, sharing our updates […]

2024 Chicagoland Walk & Roll to Cure FSHD

Robert Soule Amphitheater, Citizens Park, 511 Lake Zurich Rd, Barrington, IL 60010 Barrington, IL, United States

2024 Chicagoland Walk & Roll to Cure FSHD Saturday, September 28, 2024 Registration opens at 9:00am and the event starts 10:00am Location: Robert Soule Amphitheater, Citizens Park, 511 Lake Zurich […]

2024 Long Island Walk & Roll to Cure FSHD

Eisenhower Park, 1899 Park Blvd., East Meadow NY 11554 1899 Park Blvd., East Meadow, NY, United States

2024 Long Island Walk & Roll to Cure FSHD Saturday, September 28, 2024 Eisenhower Park, 1899 Park Blvd., East Meadow NY 11554 Register to “walk or roll” today! Invite your […]

Alberta Chapter Virtual Meeting

Zoom Virtual Meeting , United States

Alberta Chapter Virtual Meeting All Canadian FSHD Community Members Welcome Wednesday, October 2, 2024 7:00pm - 8:00pm MT RSVP: https://go.fshdsociety.org/l/701273/2023-01-17/42q91r Following the disappointing news from Fulcrum, Neil Camarta will be […]

2024 North Texas Walk & Roll to Cure FSHD

Frisco Commons Park , 8000 McKinney Rd, Frisco, TX 75034 McKinney Road, Frisco, TX, United States

2024 North Texas Walk & Roll to Cure FSHD Saturday, October 5, 024 Check-in opens at 1:00 PM, Walk & Roll begins promptly at 2:00 PM Location: Frisco Commons Park […]

Greater Philadelphia Chapter Meeting

Bryn Mawr Rehabilitation Hospital - 414 Paoli Pike, Malvern PA 19355 Paoli Pike, Malvern, PA, United States

Greater Philadelphia Chapter Meeting Saturday, October 5, 2024, 10:00am-1:00pm ET Location: Bryn Mawr Rehabilitation Hospital - 414 Paoli Pike, Malvern PA 19355 RSVP here: https://go.fshdsociety.org/l/701273/2023-02-14/42vknk Please join us for this […]

2024 Los Angeles Walk & Roll to Cure FSHD

Clover Park, 2600 Ocean Park Blvd, Santa Monica, CA 90405 Ocean Park Boulevard, Santa Monica, CA, United States

2024 Los Angeles Walk & Roll to Cure FSHD Sunday, October 6, 2024 Location: Clover Park, 2600 Ocean Park Blvd, Santa Monica, CA 90405 Register to “walk or roll” today! […]

Western PA Chapter Virtual Meeting

Zoom Virtual Meeting , United States

Western PA Chapter Virtual Meeting Tuesday, October 8, 2024 | 7:00-8:00pm ET RSVP: https://go.fshdsociety.org/l/701273/2023-05-09/439tq1 Join our virtual meeting to talk about the disappointing news that Fulcrum has halted development of […]

2024 Virginia Walk & Roll to Cure FSHD

Norfolk Zoo 3500 Granby St., Norfolk, United States

2024 Virginia Walk & Roll to Cure FSHD Saturday, October 12, 2024, 10:00am Norfolk Zoo, Norfolk, VA Register to “walk or roll” today! Invite your family, friends, club members, neighbors, […]

2024 Atlanta Walk & Roll to Cure FSHD

Chattahoochee Nature Center Ben Brady Lakeside Pavilion 9135 Willeo Rd, Roswell, GA, United States

2024 Atlanta Walk & Roll to Cure FSHD Sunday, October 20, 2024, 10:00am at Chattahoochee Nature Center Register to “walk or roll” today! Invite your family, friends, club members, neighbors, […]

10/23 Chicago Chapter Virtual Meeting

Zoom Virtual Meeting , United States

Chicago Chapter Virtual Meeting Wednesday, October 23, 2024 | 4:00-5:00pm CT Join us to discuss chapter updates and start thinking about activities for next year. We will also have the […]

10/23 New England Virtual Chapter Meeting

Zoom Virtual Meeting , United States

New England Chapter Virtual Meeting Wednesday, October 23, 2024 - 7:00pm ET Please join us for our next virtual chapter meeting! We will cover: A recap of our recent Walk […]

Pacific Northwest Chapter Winter Education Meeting

Zoom Virtual Meeting , United States

Pacific Northwest Chapter Winter Education Meeting November 2, 2024, Noon to 2pm Topic: Strength Training for Rehabilitation and Maintenance in FSHD. Our guest speaker will be Alex Walker of Walker […]

2024 Drum & Roll to Cure FSHD

National Aviary Allegheny Commons Park

2024 Drum & Roll to Cure FSHD Sunday, November 3, 2024, 1:00pm National Aviary - The Garden Room - Pittsburgh, PA In this unique and amazing event, FSHD warriors will […]

Colorado Chapter Meeting (In-Person)

Landsdowne Arms Restaurant Dorchester Street, Highlands Ranch, CO, United States

Colorado Chapter Meeting (In-Person) Sunday, November 17, 2024 | 12:00-2:00pm MT, followed by the Broncos game Landsdowne Arms Restaurant 9352 Dorchester St, Highlands Ranch, CO 80129 RSVP: https://go.fshdsociety.org/l/701273/2023-03-30/4327q4 Join the […]

Ontario Chapter Brunch Meeting

Milestones Richmond Hill 30 High Tech Rd, Richmond Hill, ON, Canada

Ontario Chapter Brunch Meeting Sunday November 24th, 2024: 11:00am - 1:00pm ET Milestones Richmond Hill (30 High Tech Rd. Richmond Hill ON L4B 4L9) Join our Ontario FSHD friends for […]

12/11/24 NYC/NJ-Area Virtual Chapter Meeting

Zoom Virtual Meeting , United States

Greater NYC/NJ-area Chapter Virtual Meeting - Wednesday December 11th, 6pm ET Dear NYC & NJ area FSHD Friends, Please join our local FSHD Community for a virtual meeting by zoom […]

12-16 Western PA Virtual Chapter Meeting

Zoom Virtual Meeting , United States

Western PA Chapter Virtual Meeting Monday, December 16, 2024 7:00-8:30pm ET RSVP: https://go.fshdsociety.org/l/701273/2023-05-09/439tq1 Join our virtual meeting to celebrate this year's accomplishments and to start discussing our plans for 2025! […]

Event Series 2025 Chapter Meetings

Bay Area Chapter Hybrid Meeting

Stanford Hospital, Hoover Pavilion 211 Quarry Road, 2nd floor, Room 208 - Palo Alto, Palo Alto, CA, United States

Bay Area Chapter Hybrid Meeting (In-Person and Virtual) Sunday, January 12, 2025 | 1:00-4:00pm PT Hoover Pavilion at Stanford University - in Hoover 208 211 Quarry Rd., Palo Alto, CA […]

New England Chapter Virtual Meeting

Zoom Virtual Meeting , United States

New England Chapter Virtual Meeting Monday, January 13, 2025 | 7:00-8:00pm ET RSVP: https://go.fshdsociety.org/l/701273/2023-03-03/42xr1c Join us for chapter and FSHD Society updates, a debrief and takeaways from the November 2nd […]