Thank you
In 2019, you were the catalyst that empowered the FSHD Society to launch an aggressive plan to accelerate therapeutic development for FSHD. We brought together pharmaceutical companies, researchers, government agencies and families in a working collaborative with the goal of delivering disease-modifying therapies by 2025.
Now, because of you and a group of committed passionate families joining you, we have been empowered to chart a bold course for 2020 and beyond – ultimately fulfilling our collective goal of a disease-modifying therapy to our families by 2025! Building on the activities of this past year, we are launching projects to eliminate the obstacles currently hindering effective clinical trials while working to ensure regulatory acceptance of safe & effective therapies.
