Fulcrum Therapeutics has announced successful completion of patient enrollment in REACH Phase 3 trial The FSHD Society is thrilled to announce a significant milestone in the battle against FSHD. Fulcrum […]
The FSHD Society Celebrates Fulcrum’s Milestone in the Fight Against FSHD
FSHD Connect pre-conference workshop: A Mindful Way through FSHD
[…] stress, illness, and disability. This is being offered as a pre-conference activity of the 2018 FSHD Connect. If you wish to attend, RSVP to Robyn O’Leary at robyn.oleary@fshdsociety.org. Thank you! […]
Get involved with research! FSHD-affected and FSHD-unaffected volunteers needed
Get involved with research! FSHD-affected and FSHD-unaffected volunteers needed for research study using (MRI) and magnetic resonance spectroscopy (MRS) imaging in skeletal muscle at KKI, Baltimore, Maryland. Learn more about […]
Challenging the narrative: new film stars actor with FSHD
Good Bad Things is unlike any film you’ve ever seen by Erin Saxon, FSHD Society Good Bad Things is almost here! Last August, we shared updates on the project, and […]
World FSHD Day
Celebrate World FSHD Day on June 20th Every June 20th, people around the world join in activities to raise awareness for Facioscapulohumeral muscular dystrophy (FSHD) through World FSHD Day. Why […]