This meeting is the FSHD Community’s forum to present testimony by patients and family caregivers and educate the FDA on how FSHD has impacted your life or the life of your loved ones. Your input will result in a Voice of the Patient Report that will be submitted to the FDA’s Division of Neurology Products, Office of New Drugs, for inclusion in the framework used to evaluate future FSHD therapies. Your views carry great weight with the agency when it considers whether to approve a new therapy.
We encourage everyone—patients and family members, at every stage of disease progression—to get involved.
You can attend via the free, live webcast on April 21st from 10:00 a.m. to 3:30 p.m. Eastern time. A limited number of spaces are available for in-person attendees.
Be Part of the Answer
Mark your calendar and register NOW for the live webcast
Our forum will be webcast live on April 21 from 10:00 a.m. to 3:30 p.m. Eastern time. You will be able to interact and vote in online polls.
Make sure we have your current email address
All communication about this event will happen online. Watch your inbox and check your spam folder. Provide us with your email here.
Come to the live event
April 21, 10:00 a.m. to 3:30 p.m.
To participate in-person, plan on a trip to the College Park Marriott Hotel & Conference Center in Hyattsville Maryland. Note: SPACE IS LIMITED