Our Signature Fundraising Event
The Walk & Roll to Cure FSHD is the only national event focused solely on funding progress for FSHD. Led entirely by dedicated volunteers, supported by staff, these events take place all over the nation. With your support, there will be more of them popping up all the time!
Participating in a Walk & Roll is a life-changing event that unites families, friends, neighbors, and local businesses to forge powerful connections and strengthen our families and our community.
When we began planning for the inaugural Walk & Rolls to Cure FSHD in early 2018, a $105,000 fundraising goal felt ambitious. Now, two Walk seasons later, we have quadrupled our goals, welcomed hundreds of participants, and we know that we are only just getting started.
Check out how much we were able to accomplish just in 2019:
More than $420,000 raised by 11 walks from coast to coast.
1,369 walkers/rollers.
Involvement from 115 sponsors.
Thousands reached with the story of FSHD, increasing awareness and understanding.
So many things factor into the success of this event – tremendous volunteer leaders, a growing army of engaged walkers and fundraisers, corporate supporters, and staff leadership. Also playing a pivotal role was our investment in the technology needed to support it all. Our peer-to-peer system made it easy for individuals and teams to share personal stories with their friends and family and to enlist them to fundraise on their behalf.
We couldn’t be prouder of this growing community of activists, and we can’t wait to bring this movement to more communities next year and making an even greater impact as we drive toward treatments to families by 2025!
Interested in hosting your own walk?
Let us know what you have in mind! Share some details and connect with us HERE.
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List of Events
San Diego Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 San Diego Walk & Roll to Cure FSHD has been scheduled! We hope to see you on Saturday, July 11th, 2020 at Harbor Island Park! Please reach out to the Chapter Director, Amy Bekier, with any questions! She can be found at: SanDiegoChapter@FSHDSociety.org. We look forward to seeing you on July 11th!
Find out more »Colorado Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Colorado Walk & Roll to Cure FSHD has been scheduled! We hope to see you on Saturday, September 12, 2020 Please reach out to the Walk Leader, Anne Babcock, with any questions! She can be reached at COWnR@fshdsociety.org We look forward to seeing you on the 12th!
Find out more »Chicagoland Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Chicagoland Walk & Roll to Cure FSHD has been scheduled! We hope to see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Dave Lukas, with any questions! He can be reached at ChicagoChapter@fshdsociety.org We look forward to seeing you on the 12th!
Find out more »