The Walk & Roll to Cure FSHD is the only international event focused solely on funding progress for FSHD. Led entirely by dedicated volunteers, supported by staff, events take place all over the US and Canada.
We began the campaign in 2018 with just 5 events. In 2021, the second year of a pandemic, this community of fierce FSHDers continued to face challenges head on. Volunteers across North America - the U.S. and Canada - celebrated 29 successful Walk & Roll events.
4,820 walkers, donors and volunteers
Since the Walk & Roll began we have raised almost $2 million for groundbreaking FSHD research and programs of patient education and support.
Save the Date!
2022 Walk & Roll to Cure FSHD
International Celebration Date
September 17, 2022
- in a location near you! -
Each year, our FSHD Radio podcast host, Tim Hollenback, holds a 4 hour, coast to coast, Walk & Roll celebration livestream. Walkers and Rollers check in with us live from Florida, to Canada, to California - and all points in between. We celebrate teams and top fundraisers, share personal stories, and come together... one voice that is thousands strong, to say, "FSHD does not get the final word; we will keep walking and rolling until a cure is found!"
Team Captains, You Are Our Heroes!!!
Team captains put in a lot of extra time and effort to rally their family and friends for FSHD and we want to celebrate and support that. That's why we've created a Super Hero Success Kit for team captains... to help your teams achieve even greater success and have even more fun!
Participate in a way that works for you!
In person or virtual, all roads come together through powerful online tools and an international livestream celebration. Want to participate but live far from the event site? A morning person and want to walk/roll at 7am? Whatever you are most comfortable with, there is a way for you to join this incredible annual effort!
We celebrate the success of the 2021 Walk & Roll and look forward to walking and rolling with you in 2022!