The future is in powerful hands… YOURS
The FSHD Society is committed to delivering treatments for families by 2025. As the honest broker and only FSHD organization with the ability to convene all of the stakeholders to collaborate on solutions, we are uniquely positioned to make this happen. But we can’t do it alone. We need you to join us. Your participation is vital to creating a world free of the suffering caused by Facioscapulohumeral Muscular Dystrophy (FSHD).
There are many ways you can get involved and play an active part in this work.
The Gift of Your Time, Talent and Treasure
One of your greatest opportunities to increase awareness while funding progress is through participation in one of our Walk & Roll to Cure FSHD events. Local volunteers from across the country have stepped up to lead events from coast to coast, coming together in one, nationwide celebration on September 12.
And there are many ways to get involved beyond the Walk & Roll campaign...