With generous support from patients, families, friends, major donors, and sponsors, the FSHD Society will keep working to accelerate research leading to treatments. We have earned your trust. The FSHD Society earned eleven consecutive 4-star awards from Charity Navigator, placing us among the highest-performing U.S. charities. We believe that the best way to serve the FSHD community is to accelerate promising research and foster an environment for scientific collaboration.
There are many ways you can support our work:
Thank you for your generous support!
To make a gift by phone, please call us at: 781-301-7301.
To make a gift by check, please download and complete our Offline Donation Form and mail to:
FSHD Society
Department 960
P O Box 4106
Woburn, MA 01888-4106
To make a gift by credit card, please click the button below!
Become a Torch Bearer - our newly named monthly giving program! Small gifts given consistently over a long period of time make a huge impact. This is your opportunity to make a larger impact in lighting the way to a cure by supporting the Society's goal to have disease modifying therapies to our families by 2025 with a monthly sustaining gift.
Light the way to a cure! To learn more and become a Torch Bearer, please click HERE.
Did you know many companies offer a matching gift program to encourage philanthropy among their employees? And that some companies will even match to spouses, retirees, and board members?
By simply completing the matching gift form from your employer, you may be able to double, or even triple, the impact of your gift!
Find out if your company will match your gift HERE
If you do not find your employer listed, please check with your company’s Human Resources department to see if your company offers a matching gift program. Many companies allow you to submit the form on their website. Otherwise, you may mail the completed form to the FSHD Society, and we’ll handle the rest:
FSHD Society
450 Bedford Street
Lexington, MA 02420 USA
It’s easy to donate stocks, bonds and mutual fund shares to support the FSHD Society, and it may provide you with significant tax benefits!
If you would like more information on gifts of stocks, bonds, or mutual funds, please contact the FSHD Society office at (781) 301-6058 or email lisa.schimmel@fshdsociety.org
Gifts of $2,500 or more are acknowledged in the FSHD Society Annual Donor Impact Report, unless you request anonymity.
How to Make a Gift of Stock
The following information will help you and/or your broker process the transaction. Thank you in advance for your generous support.
FSHD Society’s Wells Fargo brokerage account information is as follows:
Patricia Mitchell
Sr. Registered Client Associate
Wells Fargo Advisors
26135 Carmel Rancho Blvd.
Bldg. E, Suite 200
Carmel, CA 93923
831-625-7477
patricia.mitchell@wellsfargoadvisors.com
Donors can transfer eligible securities to Wells Fargo through the Depository Trust Company (DTC). Donors should give their delivering brokerage firm the following instructions:
• Wells Fargo’s DTC number: 0141
• The Wells Fargo account number: 6497-7965
• The FSHD Society’s Federal I.D.: 52-1762747
Please have your broker notify Lisa Schimmel, CFO at 781-301-6058 or lisa.schimmel@fshdsociety.org prior to transfer. The broker should notify Lisa of the name of the stock, the number of shares, and your name.
Gift date and valuation are determined per IRS regulations. The official gift date is the date the shares arrive in the FSHD Society account. The value of the stock is the average of the high and the low.
Gifts to the FSHD Society through employer-sponsored charitable campaigns make a powerful difference in the Society’s efforts to find treatments for patients, to improve their quality of life, and to help provide hope for a cure through the promise of research.
Workplace Giving
Gifts to the FSHD Society through employer-sponsored charitable campaigns make a powerful difference in the Society’s efforts to find treatments for patients, to improve their quality of life, and to help provide hope for a cure through the promise of research.
- The Combined Federal Campaign: The mission of the Combined Federal Campaign (CFC) is to support and promote philanthropy through a program that is employee focused, cost efficient, and effective in providing all federal employees the opportunity to improve the quality of life for all. Federal employees and military personnel can donate to the FSHD Society, through the Combined Federal Campaign (CFC). Please consider making a contribution to the FSHD Society through the CFC. The CFC is operated by the United States Government Office of Personnel Management. For more information about the CFC, please visit the OPM website. The FSHD Society CFC code is #10239.
- The United Way: Many donors support the FSHD Society through the United Way campaign in their workplace. If you would like to participate in your United Way campaign and help the Society at the same time, contact your company’s Human Resources office to learn about the Society’s eligibility. Often we will need to submit information to the local United Way, and we will be pleased to do that.
- State employee campaigns: The FSHD Society is a registered charity in all 50 states. We can submit a state campaign application upon request, for state government employees who wish to give through a workplace campaign. Deadlines for applications are usually around February 20, so please make your request well before the deadline.
- Other Corporate Charitable Campaigns: If your company sponsors or leads other workplace giving campaigns, please consider inquiring about how the FSHD Society might participate.
If you have ever wished that you could do more to help in the fight against FSHD, we invite you to consider including the FSHD Societ
y in your Will or Estate Plan.
To learn more about the FSHD Society Legacy Circle and the numerous ways you can leaving a lasting legacy, please click here.
To honor their lifetime commitments and to encourage others to step forward in making their own plans, we welcome donors who provide for the Society through their estate as members of the FSHD Society Legacy Circle. If you have already included the Society in your plans, please let us know by using the Contact Us Form. Doing so will allow us to thank and recognize you for your gift intention, and your example may inspire others.
Before making any changes to your plans, we urge you to consult your financial and legal advisors. If you have questions, please contact Heidi Roy at (781) 301-8530 or heidi.roy@fshdsociety.org
Give painlessly by using the AmazonSmile portal every time you shop on Amazon. Just register the FSHD Society as your charity of choice, and Amazon will donate 0.5% of your purchase to the Society. Spread the word by handing out an information card about this program. Download the card here.
On GoodShop.com, you can support the FSHD Society wherever you shop anywhere online using their “fetch” tool! They will donate a percentage of what you purchase at no cost to you. Check it out: GOODSHOP.
List your item on Ebay and designate a portion (up to 100%) to be donated to the FSHD Society. Let us know that you have listed an item so we can promote it to our members! Learn how to direct your Ebay proceeds to charity by watching this video.
If you still have questions about any of this information or require some additional assistance, please contact us!