No one should ever face FSHD alone.
We work to connect patients, family and loved ones to others who understand firsthand what you’re going through. Whether you are looking for information, resources or just a shoulder to lean on, ther FSHD Society gives you the support you need to keep hope within reach.
There is great power in community. When we come together, each bringing our own unique strengths and skills, we inspire each other to go farther and reach higher than we can when we go it alone.