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Financials

Home / About Us / Financials

2022 Financials Summary

The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.

Over the last three decades,. the work of the FSHD Society has accelerated major advancements in the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD.

The FSHD Society is deeply committed to working with ingenuity and integrity to accelerate research leading to treatments by 2025. We envision a world free of the suffering caused by FSH Muscular Dystrophy (FSHD.) We will work tirelessly to help our families live a better life until the day a cure is found.

2022 Financial Graph

As an organization that not only meets, but exceeds the standards set by all groups that monitor the nonprofit sector, we can be proud of how we ensure donor funds are put to the best possible use in achieving our mission.

We have earned your trust. The FSHD Society earned 14 consecutive 4-star awards from Charity Navigator and in 2021 received a Platinum Seal of Transparency on GuideStar, placing us among the highest-performing U.S. charities. We are also an accredited charity of the Better Business Bureau, a distinction that is very hard to receive.

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Financials & Donor Reports

Annual Donor Reports

  • 2022 Donor Impact Report
  • 2021 Donor Impact Report
  • 2020 Donor Impact Report
  • 2019 FSHD Society Report Card
  • 2018 FSHD Society Report Card
Additional Donor Reports Expand
  • 2017 Donor Report
  • 2016 Donor Impact Report
  • 2015-2016YTD Donor Impact Report
  • 2014-2015YTD Donor Impact Report
  • 2013 Annual Donor Report
  • 2012 Annual Donor Report
    (We inadvertently omitted Judith and Ken Seslowe. The FSHD Society deeply regrets the error.)
  • 2011 Annual Donor Report
  • 2010 Annual Donor Report
  • 2009 Annual Donor Report
  • 2008 Annual Donor Report

In the Annual Donor Report, we showcase our accomplishments and we detail revenue and spending for the calendar year. The FSHD Society Annual Donor Report is compiled on a cash basis of accounting.  This means that revenue is recorded when the money is received; expenses are recorded on an accrual basis when the funds are spent.

Accrual Accounting recognizes revenue when it is earned/committed (not necessarily received) and expenses when incurred or billed (but not paid).  The tax forms and the audited financial statements use accrual accounting as required by generally accepted accounting principles.

Tax Forms (990 & 501)

  • 2021 Form 990
  • 2020 Form 990
  • 2019 Form 990
  • 2018 Form 990
  • 2017 Form 990
  • 2016 Form 990
Additional Tax Forms Expand
  • 2015 Form 990
  • 2014 Form 990
  • 2013 Form 990
  • Also available on the Foundation Center website
  • Forms 990 can also be found on Guidestar
  • Prior years’ 990s available from the FSHD Society by request.
  • 2013 501(c)(3) Tax Form

Audited Financial Statements

  • 2021 Audited Financial Statement
  • 2020 Audited Financial Statement
  • 2019 Audited Financial Statement
  • 2018 Audited Financial Statement
  • 2017 Audited Financial Statement
  • 2016 Audited Financial Statement
Additional Audited Financials Expand
  • 2015 Audited Financial Statement
  • 2014 Audited Financial Statement
  • 2013 Audited Financial Statement
  • 2012 Audited Financial Statement

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General Mailing Address:

75 North Main Street, Suite 1073
Randolph, MA 02368 U.S.A.

Mail Donations to:

Department 960
PO Box 4106
Woburn, MA 01888-4106

(781) 301-6060

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