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Research grants

Apply for a Grant

The FSHD Society offers investigator-initiated research grants to support basic, translational and clinical-based research in facioscapulohumeral muscular dystrophy (FSHD). The application process begins with the submission of a brief Letter of Intent (LOI) describing the aims and objectives of the proposal. LOIs are reviewed on an ongoing basis. Once approved, investigators will be invited to submit a full proposal for consideration and review by the FSHD Society's Scientific Advisory Board (SAB).

Application Guidelines

  • Preference will be given to postdoctoral trainees, clinical fellows and younger faculty establishing their first independent laboratory (less than 5 years). More established researchers should allow their postdocs and fellows to apply for these awards directly, while providing mentorship and guidance for a successful outcome to the proposal.
  • The FSHD Society will no longer support pre-doctoral training fellowships.
  • Awards have ranged from $5,000 to $75,000 per year for a duration of up to two years.
  • All payments subsequent to the initial installment are subject to submission of a satisfactory progress report, which is due at six-month intervals. Progress reports will be kept confidential.
  • In accordance with the FSHD Society’s Policies on Awards for Research on FSHD, propagatable reagents and biomaterials, including monoclonal antibodies, recombinant DNAs, cell lines, tissue biopsies, and animal models created using FSHD Society funds are to be made freely available to other investigators following publication of the relevant paper.

Letters of Intent (LOI) due by November 15, 2021

  • Requirements for LOI submission:
    • Description of the intended proposal and specific aims (500 words or less)
    • Relevance and impact to the field of FSHD (300 words or less)
    • Collaborator's details (if applicable)

Grant proposals (by invitation) due by December 15, 2021

  • Requirements for full proposal submission:
    • Executive & lay summary
    • Proposal including preliminary data (5 pages or less)
    • Budget using provided template
    • Milestones
    • Other Support (Existing/Pending grants)
    • Curriculum Vitae (CV) or Resume

Decisions communicated in April 2022.

If you have questions, please contact grants@fshdsociety.org.

 

Submit a Letter of Intent
Grants We Have Funded
Grant opportunities

Other Grant Opportunities

Researchers, note that NIH and MDA (and most likely AFM and MD UK) are interested in receiving more applications for FSHD projects.

Association Française contre les Myopathies (AFM)

Current calls for research proposals.

Created in 1958 by a group of patients and their families, and recognized as being of public utility in 1976, Association Francaise contre les Myopathies (AFM—French Muscular Dystrophy Association). Its mission is to determine targets for research priorities, and to present them to the Board of Directors of AFM, and to launch the corresponding Call for Proposals. It evaluates the suitability and quality of the proposed research programs, and oversees, a posteriori, the quality of the research. It may call on national or international scientific experts. The grant applications, including the recommendations of the Scientific Council, are presented to the Scientific Commission of the Board, which gives its recommendation and pre-validation. The final validation of the financial engagement is given by the BCA (Managing Committee of the Board) or the Board, depending on the importance of the projects.

The FSHD Global Research Foundation

Founded in 2008 and based in Australia, FSHD Global Research Foundation funds health and medical research on the causes, prevention, control, relief and cure for FSHD. The Foundation is interested in basic and translational scientific and clinical research. For more information, please see the FSHD Global Research Foundation Research Grants and Application Guidelines.

Friends of FSH Research

Friends of FSH Research Independent Investigator Grants provides support for investigators during the critical period between the initiation of research and the receipt of sustained funding. A two-year award typically up to $50,000 per year (typical maximum of $100,000 for two years) is provided to scientists who are clearly independent and function at a principal investigator level. Friends of FSH Research will consider proposals for clinical, basic or applied research; research must be relevant to the understanding and treatment of Facioscapulohumeral Muscular Dystrophy. For instance, identifying the DUX4 promoter is of great interest.

Muscular Dystrophy Association

The Muscular Dystrophy Association (MDAUSA) supports research aimed at developing treatments for facioscapulohumeral muscular dystrophy (FSHD). For more information, please see MDA Research Grants Programs.

Muscular Dystrophy Campaign

Apply for a research grant.

The Muscular Dystrophy Campaign considers applications for research funding in accordance with its research strategy. This includes research into more than 60 different types of muscle-wasting diseases. The charity has an application process in place that involves a rigorous peer review and a panel of “lay experts” so that only the best research is funded. For more information on how to apply, please read about our application procedure.

NIH Program Officers

Glen Nuckolls, PhD Program Director, Neuromuscular Disease Channels, Synapses, and Circuits Cluster National Institute of Neurological Disorders and Stroke 6001 Executive Boulevard, Room 2142, MSC 9523 Bethesda, MD 20892-9523 Email: nuckollsg@mail.nih.gov

Tiina Urv, PhD Eunice Kennedy Shriver National Institute for Child Health and Human Development (NICHD) Phone: 301-402-7015 Email: tu36j@nih.gov

Jonathan R. Kaltman, MD National Heart, Lung, and Blood Institute RKL2 – Two Rockledge Ctr, 8222 Mail Stop: 7940 6701 Rockledge Drive Bethesda, MD 20892 USA Phone: (301) 435-0528 (301) 480-1454 Email: kaltmanj@mail.nih.gov