Every connection counts and there are many ways to plug in to the FSHD community. From fundraising events to educational offerings available online and in person.
Walk & Roll to Cure FSHD
The Walk & Roll to Cure FSHD helps us team up with friends, loved ones and co-workers to change the world for everyone affected by facioscapulohumeral muscular dystrophy.
Events Calendar
Connect with families and experts by attending one of our chapter and local support group meetings. Check out our events calendar to see what’s coming up near you.
FSHD Connect
FSHD Connect, our bi-annual conference, brings together hundreds of patients, family members, researchers, physicians and health experts for a day-and-a-half of immersive learning and community building.