Every connection counts and there are many ways to plug in to the FSHD community. From fundraising events to educational offerings available online and in person, there is something for everyone!
Connect with families and experts by attending one of our chapter and local support group meetings. Check out our events calendar to see what’s coming up near you.
This is your center for advanced education about the art and science of living with FSH muscular dystrophy. Learn about the latest research, medical advances, wellness, fitness and exercise, and much more. Sign up for monthly webinars and virtual group meetings.
FSHD Society Radio
Walk & Roll to Cure FSHD
The Walk & Roll to Cure FSHD is the signature fundraising event for FSHD. Led by local volunteers in communities across the US, the Walk & Roll allows you to team up with friends, loved ones, and co-workers to change the world for everyone affected by FSHD.