FSHD Society Radio

With Your Host, Tim Hollenback

Before his diagnosis in 2016, Tim had never heard of FSHD. The day of the diagnosis he was shocked and scared.

He looked for support and found it with his wife, Angie, and their two sons Carter and Chase. He also found it in the FSHD Society. He immediately volunteered to host a podcast which has grown in popularity and increased its impact ever since. Tim's efforts have helped to create a great global presence for others needing support.

FSHD Radio releases two episodes each month. Community Profiles in FSHD premieres on the second Tuesday and Hot Off the Press premieres on the fourth Thursday.

You can watch the show on YouTube @FSHDSociety or Facebook @FSHDSociety, or listen at your convenience wherever you like to stream your favorite podcasts.

When Tim is not coming to you across the airwaves on FSHD Radio, he is hard at work leading the Wisconsin Chapter group, helping others in his community connect and engage in the work of the FSHD Society. Tim is also a youth baseball coach and a member of the American Baseball Coaches Association (ABCA). He is also part-owner of Focus Baseball. He uses his coaching skills to help build the FSHD community and support others.

All of Tim's efforts, on air and on the ground, foster patient support and education, as well as raising funds to cure this disease.