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FSHD Society Radio

Home / FSHD Society Radio
FSHD Society Radio Show
Tim Hollenbeck, FSHD Radio show host

We want to hear from you

 

Interested in being a guest on the radio show?

Have a topic you'd love to hear Tim cover?

Let us know what you have in mind!
Email Tim at FSHDRadio@fshdsociety.org

With Your Host, Tim Hollenback

 

Before his diagnosis in 2016, Tim had never heard of FSHD. The day of the diagnosis he was shocked and scared.

He looked for support and found it with his wife, Angie, and their two sons Carter and Chase. He also found it in the FSHD Society. He immediately volunteered to host a podcast which has grown in popularity and increased its impact ever since. Tim's efforts have helped to create a great global presence for others needing support.

FSHD Radio releases two episodes each month. Community Profiles in FSHD premieres on the second Tuesday and Hot Off the Press premieres on the fourth Thursday.

You can watch the show on YouTube @FSHDSociety or Facebook @FSHDSociety, or listen at your convenience wherever you like to stream your favorite podcasts.

When Tim is not coming to you across the airwaves on FSHD Radio, he is hard at work leading the Wisconsin Chapter group, helping others in his community connect and engage in the work of the FSHD Society. Tim is also a youth baseball coach and a member of the American Baseball Coaches Association (ABCA). He is also part-owner of Focus Baseball. He uses his coaching skills to help build the FSHD community and support others.

All of Tim's efforts, on air and on the ground, foster patient support and education, as well as raising funds to cure this disease.

Our most recent episode

Some of our favorite episodes

Play Video
FSHD Radio Community Profiles with Actor and Comedian Steve Way
Play Video
FSHD Radio Show: Community Profiles with Sam Ray, a teenager who is living with Early-onset FSHD

Watch the show on YouTube or Facebook @FSHDSociety

FSHD Society on YouTube Live
FSHDSociety on Facebook

Or listen wherever you tune in to your favorite podcasts - search for "FSHD Society Radio"

FSHD Radio on iHeart Radio
FSHD Society Radio on Spotify
FSHD Society Radio on Radio Public
FSHD Society Radio on deezer
FSHD Society Radio on Stitcher
FSHD Society Radio on Castbox
Catch up on past episodes

Calendar of FSHD Radio Shows

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Today

October 2023

Tue 10
FSHD Society Radio logo with microphone
Featured Featured Oct 10 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, October 10th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

Thu 26
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Oct 26 @ 9:00 am

FSHD Radio: Hot off the Press with the FSHD Navigator

Facebook and YouTube

Thursday, October 26th  Today's program features the FSHD Society's Anna Gilmore, who oversees the Society's new initiative, FSHD Navigator.  This program will provide superior in-person and web-based assistance to individuals... Read More »

November 2023

Tue 14
FSHD Society Radio logo with microphone
Featured Featured Nov 14 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, November 14th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

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Randolph, MA 02368 U.S.A.

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FSHD Society
P.O. Box 411617
Boston, MA 02241-1617

(781) 301-6060

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