We have traveled far, making great progress together. Right now, is one of those moments when we can make history. Your gift will have immediate impact:
- Investing in cutting-edge research toward new treatments;
- Leveraging millions of dollars from other sources for FSHD research;
- Transforming the scope and speed of clinical trials through our PACT (Patients Accelerating Clinical Trials) Initiatives and upcoming registry;
- Activating a collective world-wide community through the FSHD Society-led World Alliance and the chapter program to speak in a collective voice demanding effective treatments and a cure.
$3.4 million to speed us along our journey (Part 1)
How projects we have funded will help us get more and better treatments to our community by June Kinoshita, FSHD Society Many of you have heard us describe the FSHD… Read More »
$3.4 million to speed us on our journey (Part 2)
Building tools to accelerate drug development and clinical trials In the pioneering days of the Society, all our research funding went to basic research aimed at discovering the genetic cause… Read More »
$3.4 million to speed us on our journey (Part 3)
The foundations on which drug development happens “Infrastructure is basic physical and organizational structures…needed for the operation of a society or enterprise.” —Oxford Dictionary In a rare condition like FSHD, it’s… Read More »
Activating the global community
Together we are stronger than FSHD The FSHD Society’s mission is to advocate for every patient to live fully while doing all we can to accelerate the development of treatments… Read More »
Using our leverage
A few years ago, we told our donors that a gift to the FSHD Society “is one of the most powerful investments you will ever make to advance medical research.”… Read More »
Springboards to the future
Everything we do propels us faster toward treatments and a cure We often speak of “filling potholes” and “overcoming obstacles” toward treatments and cures, but what the FSHD Society has… Read More »
Invest in shaping the future for families living with FSHD
We are on a journey together. Whether by fate or providence, we have been traveling together with purpose and resolve, focused on one goal: speeding the delivery of effective treatments to our families.