We have traveled far, making great progress together. Right now, is one of those moments when we can make history. Your gift will have immediate impact:
- Investing in cutting-edge research toward new treatments;
- Leveraging millions of dollars from other sources for FSHD research;
- Transforming the scope and speed of clinical trials through our PACT (Patients Accelerating Clinical Trials) Initiatives and upcoming registry;
- Activating a collective world-wide community through the FSHD Society-led World Alliance and the chapter program to speak in a collective voice demanding effective treatments and a cure.
How projects we have funded will help us get more and better treatments to our community by June Kinoshita, FSHD Society Many of you have heard us describe the FSHD… Read More »
Invest in shaping the future for families living with FSHD
We are on a journey together. Whether by fate or providence, we have been traveling together with purpose and resolve, focused on one goal: speeding the delivery of effective treatments to our families.