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Learn about the latest research, managing your condition, and empowering our community!
Every person diagnosed with FSHD embarks on their own unique journey, yet none of us should walk alone.
FSHD 360 Conferences (formerly known as FSHD Family Days) offer the latest in research, condition management, and personal empowerment for those living with Facioscapulohumeral muscular dystrophy.
Multiple conferences are held each year, in cities across the US, with experts in the field - most often in partnership with Clinical Trial Research Network sites. We hope you will check the schedule below and plan to attend a conference near you.
We know not everyone can attend in-person so we are thrilled to offer access to the videos from these conferences. Just fill out the short form to the right for free access to the FSHD 360 playlist. This allows for unlimited viewing of all our 2021 conference recordings.
We hope this information will help you manage the disease, learn about the latest in research, and identify local resources you can tap into for more.
Access Conference Videos
Upcoming FSHD 360 Events
Utah FSHD 360
University of Utah Guest House & Conference Center 110 Fort Douglas Blvd., Salt Lake City, UT10:00-3:00 PM Mountain Time The FSHD Society, in collaboration with our Utah and Idaho chapters and the University of Utah, is hosting this year’s Utah FSHD 360 conference. The University... Read More »
Kansas City FSHD 360
Kauffman Foundation Conference Center 4801 Rockhill Road, Kansas City, MO10:00-3:00 PM Central Time The FSHD Society, in collaboration with our Kansas chapter and the University of Kansas Medical Center, is hosting this year’s Kansas City FSHD 360 conference. The... Read More »
FSHD 360 Conferences are made possible through the support of our generous sponsors:
November 2020, FSHD Family Day was hosted by the University of Kansas Medical Center (UKMC), Department of Neurology, and Jeffrey M. Statland, M.D. in partnership with the FSHD Society. KUMC is an integral part of the FSHD Clinical Trial Research Network (CTRN)