Learn about the latest research, managing your condition, and empowering our community!
Every person diagnosed with FSHD embarks on their own unique journey, yet none of us should walk alone.
Formerly known as FSHD Family Days, FSHD 360 Conferences are for patients, families, clinicians, and researchers who share an interest in Facioscapulohumeral muscular dystrophy. Multiple conferences are held each year, in cities across the US, with experts in the field, in order for families to connect and learn more about advances in FSHD research.
FSHD 360 conferences are designed to empower patients and care partners to manage the disease, learn about the latest research and connect with local resources. These events are fully accessible and are designed for people at every stage in their journey with FSHD. To ensure a spot, we encourage early registration.
Upcoming FSHD 360 Events
Aug
28
FSHD 360 University of Colorado
Save the date! Meet the dedicated clinicians and researchers at the University of Colorado, which joined the FSHD Clinical Trial Research Network last year. Dr. Matthew Wicklund and his team will answer your questions about your health, genetic counseling and testing, physical and occupational therapy, and much more. Learn about cutting-edge research at UC as well as promising advances in FSHD therapies. UC staff will be on hand to help you make an appointment or enroll in an ongoing research…
Find out more »Sep
25
FSHD 360 UCLA
Save the date! Meet the dedicated clinicians and researchers at UCLA at this year's FSHD 360 Los Angeles conference. Dr. Perry Shieh and his team will answer your questions about your health, genetic counseling and testing, physical and occupational therapy, and much more. Learn about cutting-edge research at UCLA as well as promising advances in FSHD therapies. UCLA staff will be on hand to help you make an appointment or enroll in an ongoing research study. And don't miss out…
Find out more »Proudly sponsored by...
November 2020, FSHD Family Day was hosted by the University of Kansas Medical Center (UKMC), Department of Neurology, and Jeffrey M. Statland, M.D. in partnership with the FSHD Society. KUMC is an integral part of the FSHD Clinical Trial Research Network (CTRN)