Learn about the latest research, managing your condition, and empowering our community!
Every person diagnosed with FSHD embarks on their own unique journey, yet none of us should walk alone.
Formerly known as FSHD Family Days, FSHD 360 Conferences are for patients, families, clinicians, and researchers who share an interest in Facioscapulohumeral muscular dystrophy. Multiple conferences are held each year, in cities across the US, with experts in the field, in order for families to connect and learn more about advances in FSHD research.
FSHD 360 conferences are designed to empower patients and care partners to manage the disease, learn about the latest research and connect with local resources. These events are fully accessible and are designed for people at every stage in their journey with FSHD. To ensure a spot, we encourage early registration.
November 2020, FSHD Family Day was hosted by the University of Kansas Medical Center (UKMC), Department of Neurology, and Jeffrey M. Statland, M.D. in partnership with the FSHD Society. KUMC is an integral part of the FSHD Clinical Trial Research Network (CTRN)