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2020 Festive Evening of Song

Home / 2020 Festive Evening of Song
Festive Evening of Song

A Stay-at-Home Concert to benefit the FSHD Society

The FSHD Society Festive Evening Concert Committee will miss seeing you in person this year. We invite you to enjoy a stay-at-home concert, nestled in your favorite chair.

Again this year, in lieu of a dinner and concert, we invite you to support the FSHD Society with a “Stay-at-Home Festive Evening of Song.” We hope you’ll be as generous as you can knowing that your impact will automatically be doubled by a matching gift.

Make a GIft
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Resilient in the face of Obstacles

We are inspired by the enthusiasm, can-do spirit, and perseverance our community has exhibited through this unprecedented time in our history. We will not let this crisis slow us down because FSHD will not slow down in stealing away our loved ones’ strength and health. Thanks to you, the FSHD Society has forged ahead this year with our landmark meeting with the FDA. Nearly two dozen biopharmaceutical companies are now working on FSHD. We remain on track toward our goal of a treatment by 2025.

Our work is urgent because time equals lives. Your support speeds up the day when we will have effective treatments for a million men, women, and children affected by FSHD. Together, we can overcome all obstacles in pursuit of this dream.

One hundred percent of net proceeds from this year’s “stay-at-home” event benefit the FSHD Society, an award-winning 501(c)(3) non-profit tax-exempt U.S. charity.

QUESTIONS? Please contact Mark Stone, President & CEO of the FSHD Society, at 781-301-7323.

 

The FSHD Society is a registered 501(c)(3) tax-exempt non-profit organization. Your gift is 100% tax-deductible.

For questions about this event, please contact Beth Johnston.

Make Your GIft Today

ON BEHALF OF EVERY PATIENT AND THEIR FAMILIES WAITING FOR A CURE, WE THANK YOU!

Festive Evening of Song Committee Co-Chairs: Judy Seslowe, Ellen Hannan

And all of the Festive Evening Concert Committee:

  • Steven Blier
  • James Chin Sr.
  • Sheila Cohen
  • Rosalind Devon
  • Jennifer Egert
  • Susan Egert-Milling
  • Sue-ann Friedman
  • Roslyn Goldstein
  • Beth & Jeff Johnston
  • June Kinoshita
  • Abigail Kirsch
  • Virginia Maxwell
  • Kevin J. Monahan
  • Jane Rittmaster
  • Emily Rosenfeld
  • Jamie Seslowe
  • Kenneth Seslowe
  • Marsha & Jerry Seslowe
  • Barbara St. Lifer

And, in loving memory of long-time Committee member, Sanford L. Batkin

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General Mailing Address:

75 North Main Street, Suite 1073
Randolph, MA 02368 U.S.A.

Mail Donations to:

FSHD Society
P.O. Box 411617
Boston, MA 02241-1617

(781) 301-6060

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