Your health and well-being are our highest priority. Many of you already felt isolated by FSHD, and with COVID-19 it became even harder to get out, or for others to visit. The fragile webs of support you built to help you get by were being shredded. In March of 2020, we started “Sequester Camp” to… Read More »
FSHD Society Sequester Camp
FSHD Advocate Magazine 2020 Issue 2 FINAL
FSHD Society Sequester Camp – Getting more sleep during restless times
Every Thursday, at 1:00 pm ET, we are hosting our “FSHD Society Sequester Camp” webinar series, which will run every week at the same time for as long as it’s needed. Anyone can join from anywhere for free. We’ll be sharing information, resources, and social support. For your personalized link to join the webinar, click… Read More »
FSHD Society Sequester Camp – Exploring the National Registry for FSHD with Artificial Intelligence
Every Thursday, at 1:00 pm ET, we are hosting our “FSHD Society Sequester Camp” webinar series, which will run weekly at the same time for as long as it’s needed. Anyone can join from anywhere for free. We’ll be sharing information, resources, and social support. For your personalized link to join the webinar, click on… Read More »
FSHD Society Sequester Camp
Every Thursday, at 1:00 pm ET, we are hosting our “FSHD Society Sequester Camp” webinar series, which will run every week at the same time for as long as it’s needed. Anyone can join from anywhere for free. We’ll be sharing information, resources, and social support. For your personalized link to join the webinar, click… Read More »