Sr. Director of Research and Patient Engagement
June Kinoshita, Sr. Director of Research and Education, joined the FSHD Society in 2012 and served as its Executive Director until September of 2017. June works at the intersection of research and the FSHD community. With the science team, she advises on strategies and programs to make sure the Society addresses the urgent needs and realities of those who are living with FSHD. With the community, she develops educational programs to support a highly engaged network of patients and family members who are empowered to advocate for their health and well-being and understand their vital role in advancing research.
Previously, June co-founded and served as Executive Editor of the Alzheimer Research Forum, the pre-eminent Web community for researchers in neurodegenerative disorders. June has worked closely with a variety of foundations to develop initiatives for multiple sclerosis, schizophrenia, amyotrophic lateral sclerosis, Parkinson’s disease, and other disorders. June served on the National Board of the BrightFocus Foundation. She is also an entrepreneur, having co-founded N-of-One, Inc., a pioneering targeted oncology company.
June graduated from Harvard College, where she concentrated in physics, and began her career as a science journalist, working as a writer and editor for Scientific American, Science, The New York Times Magazine, and many other national publications. June and her husband, Tod Machover, have two daughters and live in Waltham, MA, where they tend to cats, chickens, and a farm dating to 1790. She enjoys music of all genres, from opera to American Idol.