Welcome to the Bay Area Chapter!
Thank you for visiting the Bay Area Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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The Bay Area Walk & Roll to Cure FSHD
Our 2020 Walk & Roll has gone VIRTUAL! Please join us, and invite your family and friends from wherever they are to join us too!
We will "see" you on Saturday, September 12, 2020 - when all of our Chapters nationwide will join together!
Click the button below to register or donate!
All of our worlds have been highly impacted by the corona virus pandemic, yet our commitment to our families remains the same. This is why we must continue to move forward!
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To contact us directly, please email: BayAreaChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Please join us! Become a member of our Chapter in the sidebar.
Upcoming Events
Aug
5
FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's a great community event!
Find out more »
Webinar on scapular stabilization surgery
Dr. Anthony Romeo NOTE CHANGE OF DATE. Join us for our webinar on scapular stabilization surgery at 1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT. One of the classic symptoms of FSHD is "scapular winging." The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel's wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works…
Find out more »Sep
2
FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's a great community event!
Find out more »
KENT & SUE DRESCHER
Chapter Directors
Kent: I was diagnosed with FSH in 1982, and by that time, I’d already had some of the symptoms for about 10 years. Sue & I attended our first meeting of the Society about 2 years ago, and for me, that was the very first time I ever met somebody else with FSH, and it was amazing.
Sue: It’s been really great to meet each other and our families, and talk about support. What we’re hoping for is a building of that community.
We are both recently retired. Kent spent 27 years as a clinical psychologist at the VA hospital, and continues to be involved in some related research and writing. Sue retired from a tech company, and has been enjoying having extra time to spend with family. Sue also recently taught a class in healthy cooking for cancer survivors at a Kaiser in Santa Clara.
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