Welcome to the Bay Area Chapter!
Thank you for visiting the Bay Area Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
On Saturday, September 18, the Bay Area, San Diego, Los Angeles, and Sacramento chapters came together from across the state for one, amazing day of walking & rolling to Cure FSHD! Walkers and rollers stepped out to say "FSHD Ends with Me!" and our local event raised more than $90,000 towards the campaign total, through participants and teams from across the state.
Stay tuned as we begin the planning for our 2022 Walk & Roll to Cure FSHD!
To all who are caregivers to FSHD loved ones! Mark your calendars, our Sharegivers Hour is held on the 4th Tuesday of every month from 8-9pm EST. You will find this to be a safe place to share and listen to each other about our day to day situations. We invite you to join us!
Go to the Event Calendar to sign up.
Volunteer Spotlight: Sue & Kent Drescher
Meet your local Chapter Directors, Sue & Kent Drescher! Hear them talk about their journey with FSHD, their advice to others, and their hopes for the future.