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Bay Area Chapter

Home / Connect / Local Chapters / Bay Area Chapter
Bay Area Help and Hope

Welcome to the Bay Area Chapter!

Thank you for visiting the Bay Area Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

Thank you for supporting the Walk & Roll in 2022!

A huge THANK YOU to everyone who walked, rolled, donated, and showed up on Sunday, Sept. 18th in Sharon Park in Menlo Park, CA! We are thrilled to announce that we raised almost $15,000!!!

Want to know more about the Walk & Roll? Learn More

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Sharegiver Hour

To all who are caregivers to FSHD loved ones! Mark your calendars, our Sharegivers Hour is held on the 4th Tuesday of every month from 8-9pm EST. You will find this to be a safe place to share and listen to each other about our day to day situations. We invite you to join us!

Go to the Event Calendar to sign up.

Volunteer Spotlight: Sue & Kent Drescher

Meet your local Chapter Directors, Sue & Kent Drescher! Hear them talk about their journey with FSHD, their advice to others, and their hopes for the future.

https://www.fshdsociety.org/wp-content/uploads/2021/06/drescher.mp4

To contact us directly, please email: BayAreaChapter@fshdsociety.org

Don’t forget to follow us on FACEBOOK

Please join us! Become a member of our Chapter in the sidebar.

Upcoming Events

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Today

March 2023

Thu 23
Featured Featured Mar 23 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, March 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring... Read More »

Thu 23
Featured Featured Mar 23 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD: Hands and arms part 2

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT “FSHD is always attacking me… it never... Read More »

Thu 23
FSHD University Logo
Featured Featured Mar 23 @ 1:30 pm - 2:30 pm

FSHD University: Novel treatment strategies for FSHD

Zoom web conference

1:30 PM ET | 12:30 PM CT | 11:30 AM MT | 10:30 AM PT Nizar Saad, PhD Nizar Saad, PhD is an assistant professor at the Center for Gene... Read More »

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Kent & Sue Drescher

KENT & SUE DRESCHER

Chapter Directors

Kent: I was diagnosed with FSH in 1982, and by that time, I’d already had some of the symptoms for about 10 years. Sue & I attended our first meeting of the Society years ago, and for me, that was the very first time I ever met somebody else with FSH, and it was amazing.

Sue: It’s been really great to meet each other and our families, and talk about support. What we’re hoping for is a building of that community.

We are both recently retired. Kent spent 27 years as a clinical psychologist at the VA hospital, and continues to be involved in some related research and writing. Sue retired from a tech company, and has been enjoying having extra time to spend with family. Sue also recently taught a class in healthy cooking for cancer survivors at a Kaiser in Santa Clara.

Stay Informed on Chapter Activities!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of your local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

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Randolph, MA 02368 U.S.A.

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