Welcome to the Atlanta Chapter!
This chapter was founded by Jack Gerblick in October 2018 and officially launched the chapter on Sunday, October 14th with a fabulous event – thanks to everyone who was able to join us! Please join our chapter below to stay in touch, and receive updates about future events and plans!
North Texas Virtual Chapter Meeting
Virtual Denver, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the first Tuesday of every month for a virtual chapter meeting. This will be our time to come together... Read More »
Early-Onset Parent Roundtable – Pediatric FSHD Summit
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT The end of September saw the first-ever workshop focused solely on pediatric FSHD. The workshop,... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
The goals of the Chapter Program here in the Greater Atlanta area are to:
- Increase awareness and educate families throughout Georgia.
- Help build connections among patients, care givers, health care providers and others affected by this disease.
- Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSH.
- Last but not least let’s HAVE SOME FUN while we accomplish these goals!
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