Like and Follow us to get the latest news and updates from the FSHD Society, post questions, share information, and share our posts with your network. Join our online community via our Facebook Page, FSHD Parents, FSHD Teens/Young Adults, FSHD Muscular Dystrophy Support, and FSHD Carer Support Group.
There are also several volunteer-run private Facebook groups. These groups are private, and posts made on them will not appear on your public Facebook timeline. If you are interested in engaging in these groups, visit them on Facebook and request to join. Their administrator will take it from there.