Join us for the first official meeting as the new BC Chapter of the FSHD Society! We will meet virtually on Wednesday, March 15th 2023 at 7pm PT. Please RSVP to receive the zoom link. Come meet the Chapter Co-Directors, Priscilla Sharun and Cheryl Hooge. Our special guest for this meeting is Neil Camarta, the founder... Read More »
Hello BC Friends! Please join us for a virtual meeting on May 3rd, 2023 at 6pm PT! Our guest speaker will be Dr. Jamshid Arjomand, Chief Science Officer at the FSHD Society. He will be speaking about FSHD Clinical Trial readiness, and will give a current update on FSHD therapeutic development. Come with all of... Read More »
Hello Friends! Please join us on June 20th, 2023 at 6pm as we celebrate World FSHD Day together! WHERE: Tap & Barrel - Convention Centre : 876-1055 Canada Place, Vancouver, BC V6C 0C3 WHY: It's WORLD FSHD DAY! The global day of awareness for FSHD. WHAT: Let's have some fun as we raise awareness. Appetizers and... Read More »
