Greater NYC/NJ-area Virtual Chapter Meeting
Join us for a virtual meeting! Saturday December 9th, 2023 at 9am ET Dear Friends, I hope you can join us for the first of a series of regular bi-monthly... Read More »
Loading view.
Colorado Chapter Holiday Social Gathering
Lansdowne Arms 9352 Dorchester St., Highlands Ranch, CO, United StatesHello Friends! I hope you can join us for a Holiday Social Gathering! WHEN: Sunday, December 10, 2023, 3-6pm MT WHERE: Lansdowne Arms - 9352 Dorchester St. in Highlands Ranch.... Read More »
Featured
Wellness Hour – Chair dance party
Zoom Virtual Meeting , United StatesDancing with differences: A Moving Celebration of the Season 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Join us for a joyous and... Read More »
Featured
FSHD Radio: Community Profiles
Facebook and YouTubeTuesday, December 12th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD – Shaking Qigong with Trish Kean
Zoom Virtual Meeting , United States18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Join us this month for a session... Read More »
Sacramento Chapter Holiday Gathering
Mimi's Cafe 2029 Alta Arden Expy, Sacramento, CA, United StatesEVENT: Sacramento Chapter Holiday Gathering DATE: Thursday, December 14, 2023 TIME: 6:00 pm - 8:00 pm PT WHERE: Mimi's Cafe 2029 Alta Arden Expy, Sacramento, CA 95825 DETAILS: Many of our chapter members have... Read More »
St. Louis Chapter Holiday Gathering
4Hands Brewery 17081 N Outer 40 Rd, Chesterfield, United StatesSt. Louis Chapter Holiday Gathering DATE: Saturday, December 16, 2023 TIME: 2:00pm - 5:00pm CT WHERE: 4Hands Brewery, 17081 N Outer 40 Rd, Chesterfield, MO 63005 DETAILS: Join us for a special holiday... Read More »
Featured
Young Professionals
Young Adults – Mindfulness with Jen Egert
Zoom Virtual Meeting , United States8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT Back by popular demand, Dr. Jen Egert will lead us through a mindfulness meditation session.... Read More »
Featured
Early-Onset Parent Roundtable
Early-Onset Parent Roundtable – Youth voices
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Carden Wyckoff This month we will host a roundtable conversation with young adults with FSHD.... Read More »
Featured
FSHD University – Annual drug development update
Zoom Web Conference , United States1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Dr. Nicholas Johnson Every year, we bring you an update on therapy development for FSHD. What... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Virginia Chapter virtual monthly meeting
Zoom Virtual Meeting , United StatesPlease join us for the monthly virtual meeting of the Virginia Chapter!! This is an informal, conversational meeting where we all share ideas, frustrations, and life’s little wins. We welcome... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting , United States8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
North Texas Virtual Chapter Meeting
Virtual TX, United StatesNorth Texas Virtual Chapter Meeting 7:00pm-8:00pm CT Please join us on the last Wednesday of the month for a virtual chapter meeting. This will be our time to come together... Read More »
Featured
FSHD Radio: Hot off the Press
Facebook and YouTubeThursday, December 28th On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form... Read More »
All Canada Chapters Virtual Meeting, hosted by the Alberta Chapter
Zoom Virtual Meeting , United StatesThe Alberta Chapter invites all Canadian Chapter members to join a virtual meeting on January 9th, 2024! Guest speakers include Amanda Hill, Director of Clinical Research at the FSHD Society,... Read More »
Feeling Fit with FSHD
Zoom Virtual Meeting , United States18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
Bay Area Chapter Meeting
Stanford Hospital, Hoover Pavilion 211 Quarry Road, 2nd floor, Room 208 - Palo Alto, Palo Alto, CA, United StatesBay Area Chapter Meeting DATE: Sunday, January 14, 2024 TIME: 1:00 pm - 3:00 pm PT WHERE: Stanford, Hoover Pavillion, Room 204, 211 Quarry Rd, Palo Alto, CA 94304 DETAILS: Please join the Bay... Read More »
Featured
Young Professionals
Young Adults
Zoom Virtual Meeting , United States8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
Featured
Early-Onset Parent Roundtable
Early-Onset Parent Roundtable
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »
Featured
Treating FSHD – A broader view
Zoom Web Conference , United StatesWith Nicol Voermans, MD PhD, and Nathaniël Rasing, MD 19:00 CET | 18:00 UK | 1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00am PT While... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting , United StatesFor people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »
Idaho Chapter Anniversary Dinner
Idaho Chapter Anniversary Dinner DATE: Thursday, January 25, 2024 TIME: 6:30 - 8:30 pm MT WHERE: Louie's Pizza & Italian Restaurant, 2500 E Fairview Ave, Meridian, ID 83642 DETAILS: Join us for a special dinner... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting , United States8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Feeling Fit with FSHD
Zoom Virtual Meeting , United States18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
Featured
Breathing with FSHD, Andrea Klein
Zoom Web Conference , United StatesBreathing with FSHD, Andrea Klein 19:00 CET | 18:00 UK | 1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00am PT Today’s webinar discusses how to... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Featured
Young Professionals
Young Adults
Zoom Virtual Meeting , United States8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
Featured
Early-Onset Parent Roundtable
Early-Onset Parent Roundtable
Zoom Virtual Meeting , United States8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month,... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting , United StatesFor people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting , United States8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Feeling Fit with FSHD
Zoom Virtual Meeting , United States18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
Featured
Young Professionals
Young Adults
Zoom Virtual Meeting , United States8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
Featured
Finding reliable health information on the Internet, with Tina Griffin
Zoom Web Conference , United StatesFinding reliable health information on the Internet, with Tina Griffin 19:00 CET | 18:00 UK | 1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00am PT... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Featured
Calgary FSHD 360 conference
9:00 a.m. Mountain Time doors open | 10:00-3:00 p.m. MT conference sessions Save the date!! The FSHD Society, in collaboration with FSHD Canada Foundation and the University of Calgary, ,... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting , United States8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting , United StatesFor people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »
Feeling Fit with FSHD
Zoom Virtual Meeting , United States18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
Featured
Young Professionals
Young Adults
Zoom Virtual Meeting , United States8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting , United StatesFor people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »
Featured
Texas FSHD 360
Allen R. Baca Center 301 W. Bagdad Ave. Building 2, Round Rock, TX, United States9:00 a.m. US Central Time doors open | 10:00-3:00 p.m. US CT conference sessions Save the date!! The FSHD Society, in collaboration with the University of San Antonio Health Science... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting , United States8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Feeling Fit with FSHD
Zoom Virtual Meeting , United States18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
Featured
FSHD University – To be rescheduled
Zoom Web Conference , United States1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Josie Godfrey There is great progress toward new medicines for FSHD, but even when a drug... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Featured
Young Professionals
Young Adults
Zoom Virtual Meeting , United States8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting , United StatesFor people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting , United States8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
31st Annual International Research Congress on FSHD
Save the date! The FSHD Society’s annual FSHD International Research Congress is the premier global conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research. World renowned clinicians, medical researchers, pharmaceutical... Read More »
Feeling Fit with FSHD
Zoom Virtual Meeting , United States18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
2024 Patient Connect Conference
CONNECT 2024 will be hosted on June 15-16 in Denver, Colorado. CONNECT brings together world leaders in FSHD research, patient care, advocacy, education, and support. FSHD Connect patient conference, a... Read More »
Featured
Young Professionals
Young Adults
Zoom Virtual Meeting , United States8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting , United States8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting , United StatesFor people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »
Feeling Fit with FSHD
Zoom Virtual Meeting , United States18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
Featured
Young Professionals
Young Adults
Zoom Virtual Meeting , United States8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting , United StatesFor people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting , United States8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Feeling Fit with FSHD
Zoom Virtual Meeting , United States18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Featured
Young Professionals
Young Adults
Zoom Virtual Meeting , United States8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting , United StatesFor people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting , United States8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Feeling Fit with FSHD
Zoom Virtual Meeting , United States18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
Featured
Young Professionals
Young Adults
Zoom Virtual Meeting , United States8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Featured
CarePartner Hour
CarePartner Hour
Zoom Virtual Meeting , United States8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting , United StatesFor people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »
Feeling Fit with FSHD
Zoom Virtual Meeting , United States18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Featured
Young Professionals
Young Adults
Zoom Virtual Meeting , United States8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting , United StatesFor people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »
Feeling Fit with FSHD
Zoom Virtual Meeting , United States18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
Featured
Young Professionals
Young Adults
Zoom Virtual Meeting , United States8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting , United StatesFor people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »
Feeling Fit with FSHD
Zoom Virtual Meeting , United States18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT For people living with FSHD who are... Read More »
Featured
Young Professionals
Young Adults
Zoom Virtual Meeting , United States8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Professionals is a social and support group focused on encouraging and empowering young... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
Featured
Feeling Fit with FSHD
Feeling Fit with FSHD
Zoom Virtual Meeting , United StatesFor people living with FSHD who are interested in exercise and fitness, Feeling Fit with FSHD meets on the 2nd and 4th Thursday of every month at 12:00 pm (noon)... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »
North Carolina Chapter “Third Thursdays”
Zoom Virtual Meeting , United StatesDear friends, Welcome to the "Third Thursday" meetings of the North Carolina Chapter! Whether or not you've attended our group's events before, we hope you will join us for this... Read More »