CONNECT 2024 will be hosted on June 15-16 in Denver, Colorado. CONNECT brings together world leaders in FSHD research, patient care, advocacy, education, and support. Held every two years, FSHD... Read More »
7:30pm ET | 6:30pm CT | 5:30pm MT | 4:30pm PT 2024 Alberta Chapter - World FSHD Celebration Hello Alberta Chapter Friends!! WHAT: On World FSHD Day, June 20, we... Read More »
Saturday, July 13, 2024 The Triple Bypass The Triple Bypass stretches 118 miles, with 10,800 feet of elevation gain over 3 mountain passes: Juniper, Loveland, and Vail. George is the... Read More »
Sunday, August 18, 2024 2024 Falmouth Road Race The 2024 ASICS Falmouth Road Race promises to be an exciting event celebrating 52 years of running the iconic course along the... Read More »
12:00pm ET | 11:00am CT | 10:00am MT | 9:00am PT 2024 Sacramento Walk & Roll to Cure FSHD Saturday, September 7, 2024 Registration opens at 9:00am, the Walk starts... Read More »
9:00am ET | 8:00am CT | 7:00am MT | 6:00am PT 2024 Northeast Florida Walk & Roll to Cure FSHD Saturday, September 7, 2024 Check-in begins at 8:30am, walk begins... Read More »
