I watched my Mom and Grandma struggle with this disease, and I don’t want that to happen to anyone, anywhere, ever again. The money we're raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD). Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals, or 870,000 people worldwide. Around 20 percent will need a wheelchair by age 50. Over 70 percent experience debilitating pain and fatigue. There is no effective treatment or cure, but there is hope. Thank you for your support!"
You Could Win a Moment With Max!
Some special walk & rollers from around the country have an opportunity to win a live Moment with Max! Winners in each category below will be invited into our live Facebook event on September 12 to chat, one-on-one, with Max Adler himself!
- Highest Fundraiser - the walker/roller who raises the most money on their personal page (whether participating as an individual or on a team)
- Captain of the Largest Team – the team captain that recruits the most active team members and has the highest number of their team members raise any amount
- Social Butterfly - largest social footprint, tracked by using #NationalFSHDWalkRoll, #CureFSHD, and your local event #
You can join Max Adler as a team member, set up your own personal fundraising page, then invite your family and friends to support you as we march towards a cure. As a participant and fundraiser, you're eligible for lots of great rewards, including the Moment with Max!
Or, you can make a donation to support his efforts TODAY!
Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. Typically beginning in early teenage years with the loss of muscles in the face (facio), shoulders (scapula), upper arms (humerus), legs or core, FSHD can spread to any muscle. Around 20 percent will need a wheelchair by age 50. Over 70 percent experience debilitating pain and fatigue.
There is no effective treatment or cure, yet. But there is hope.
Our Promise: As long as we are here, no patient need ever face this disease alone. With generous donations from patients, families, friends, major donors, and sponsors, the FSHD Society will keep working to accelerate research leading to treatments by 2025 and eventually a cure.
The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research and is committed to making sure that no one faces this disease alone.