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  1. Events
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Today

February 2023

Tue 14
Featured Featured Feb 14 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, February 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. This month’s guest is Paul Ronson of Suffolk, England, a radio... Read More »

Thu 23
Featured Featured Feb 23 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, February 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.... Read More »

March 2023

Tue 14
Featured Featured Mar 14 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, March 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come.... Read More »

Thu 23
Featured Featured Mar 23 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, March 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.... Read More »

April 2023

Tue 11
Featured Featured Apr 11 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, April 11th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come.... Read More »

Thu 27
Featured Featured Apr 27 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, April 27th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.... Read More »

May 2023

Tue 9
Featured Featured May 9 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, May 9th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come.... Read More »

Thu 25
Featured Featured May 25 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, May 25th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.... Read More »

June 2023

Tue 13
Featured Featured Jun 13 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, June 13th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come.... Read More »

Thu 22
Featured Featured Jun 22 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, June 22nd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.... Read More »

July 2023

Tue 11
Featured Featured Jul 11 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, July 11th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come.... Read More »

Thu 27
Featured Featured Jul 27 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, July 27th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.... Read More »

August 2023

Tue 8
Featured Featured Aug 8 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, August 8th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come.... Read More »

Thu 24
Featured Featured Aug 24 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, August 24th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.... Read More »

September 2023

Tue 12
Featured Featured Sep 12 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, September 12th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come.... Read More »

Thu 28
Featured Featured Sep 28 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, September 28th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.... Read More »

October 2023

Tue 10
Featured Featured Oct 10 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, October 10th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come.... Read More »

Thu 26
Featured Featured Oct 26 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, October 26th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.... Read More »

November 2023

Tue 14
Featured Featured Nov 14 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, November 14th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come.... Read More »

Thu 23
Featured Featured Nov 23 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, November 23rd  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.... Read More »

December 2023

Tue 12
Featured Featured Dec 12 @ 9:00 am - 10:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, December 12th On the 2nd Tuesday of every month, join us for FSHD Radio: Community Profiles. Every month we will bring you a long-form show that will include profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come.... Read More »

Thu 28
Featured Featured Dec 28 @ 9:00 am - 9:30 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, December 28th  On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.... Read More »

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