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  1. Events
  2. Facebook and YouTube

Facebook and YouTube

Today

June 2023

Tue 13
FSHD Society Radio logo with microphone
Featured Featured Jun 13 @ 8:00 am

FSHD Radio: Community Profiles with Actress and Advocate Lauren “Lolo” Spencer

Facebook and YouTube

Tuesday, June 13th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. We’re thrilled to have Lauren “Lolo” Spencer as our Community Profiles guest this month!... Read More »

Thu 22
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Jun 22 @ 9:00 am

FSHD Radio: Hot off the Press – IRC 2023 Recap

Facebook and YouTube

Thursday, June 22nd  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated... Read More »

July 2023

Tue 11
FSHD Society Radio logo with microphone
Featured Featured Jul 11 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, July 11th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come. A new video... Read More »

Thu 27
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Jul 27 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, July 27th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated... Read More »

August 2023

Tue 8
FSHD Society Radio logo with microphone
Featured Featured Aug 8 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, August 8th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come. A new video... Read More »

Thu 24
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Aug 24 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, August 24th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated... Read More »

September 2023

Tue 12
FSHD Society Radio logo with microphone
Featured Featured Sep 12 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, September 12th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come. A new video... Read More »

Thu 28
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Sep 28 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, September 28th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated... Read More »

October 2023

Tue 10
FSHD Society Radio logo with microphone
Featured Featured Oct 10 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, October 10th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come. A new video... Read More »

Thu 26
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Oct 26 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, October 26th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated... Read More »

November 2023

Tue 14
FSHD Society Radio logo with microphone
Featured Featured Nov 14 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, November 14th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come. A new video... Read More »

Thu 23
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Nov 23 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, November 23rd  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated... Read More »

December 2023

Tue 12
FSHD Society Radio logo with microphone
Featured Featured Dec 12 @ 8:00 am

FSHD Radio: Community Profiles

Facebook and YouTube

Tuesday, December 12th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD community living rich, full lives and diving into their experiences with FSHD. More details on this episode's guest and topic to come. A new video... Read More »

Thu 28
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Dec 28 @ 9:00 am

FSHD Radio: Hot off the Press

Facebook and YouTube

Thursday, December 28th  On the 4th Thursday of every month, look for a new episode of FSHD Radio: Hot off the Press. Each month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated... Read More »

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