Lighting the Way to a Cure

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Nov

20

FSHD Society radio welcomes singer songwriters Levi Benson and Jenny Hasenjaeger

FSHD Radio welcomes Levi Benson and Jenny Hasenjaeger

Nov 20 @ 8:00 pm - 9:00 pm
Facebook Live, United States + Google Map

Jenny Hasenjaeger Levi Benson FSHD Society radio welcomes singer songwriters Levi Benson and Jenny Hasenjaeger this month. They share an FSHD diagnosis and a love of music. Levi Benson was featured earlier this year in FSHD Advocate and on our blog. Since the time he performed his first childhood song, “I Love My Lips,” made famous by VeggieTales’ Larry the Cucumber, Levi Benson’s lips have been crooning tunes. Those on the listening end of the Kansas musician's performances have been…

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Dec

18

FSHD Society radio welcomes singer songwriters Levi Benson and Jenny Hasenjaeger

FSHD Radio – December show

Dec 18 @ 9:00 pm - 10:00 pm
Facebook Live, United States + Google Map

Join radio host Tim Hollenback via Facebook Live on Wednesday, December 18, at 9:00 PM EST  - topic TBD

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