Lighting the Way to a Cure

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FSHD Society radio welcomes singer songwriters Levi Benson and Jenny Hasenjaeger

FSHD Radio – Meet Meredith Huml

Dec 18 @ 9:00 pm - 10:00 pm
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Meredith Huml Join radio host Tim Hollenback via Facebook Live on Wednesday, December 18, at 9:00 PM ET | 8:00 PM Central. His guest this month is Meredith Huml, director of the North Carolina chapter. Diagnosed at age 12 with a "disease she had never heard of," Meredith faced the wrenching loss of her beloved dancing. Her younger brother Jonathan as diagnosed with FSHD as well, with symptoms that progressed even faster than hers. After years of struggling, she has not…

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