Lighting the Way to a Cure

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FSHD Connecticut Connections

Dec 5 @ 7:00 pm - 8:30 pm
|Recurring Event (See all)

An event every month that begins at 7:00 pm on day First of the month, repeating until Dec 5, 2019

Zoom web conference United States

Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! Join from your computer or tablet: Or iPhone one-tap : +16699006833,,442453571# Or by Telephone: 669-900-6833, Meeting ID: 442 453 571 RSVP to Kathy at

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Webinar: The ABC’s of clinical trials with Dr. Rabi Tawil

Dec 7 @ 2:00 pm - 3:00 pm
Zoom web conference, United States

This year, Acceleron’s ACE-083 drug is expected to complete its phase 2b trial, and Fulcrum is conducting its trial of Dr. Rabi Tawil the first drug intended to repress DUX4, the gene implicated in causing FSHD. This is a good time to brush up on the vocabulary of clinical trials and the FDA approval process, and learn how to navigate the path to volunteering for trials. Your guide is Rabi Tawil, MD, who is principal investigator for several clinical trials…

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