Resources for Volunteer Leaders
Welcome! This resource page gives you access to the tools you need to foster Engagement, Connection, Community, and Action! You’ll find essential information such as updates from the FSHD Society, ready access to forms and documents, upcoming training opportunities, access to past trainings and materials, marketing materials and more!
Hopefully, everything you need can be found here, but if something is missing please email a member of the Community Engagement team and we will make every effort to get the information up and available to everyone.
Beth Johnston - Chief Community Engagement Officer - beth.johnston@fshdsociety.org
Ashley Ferreira - Regional Director, Western Chapters - ashley.ferreira@fshdsociety.org
Jenny Gast - Regional Director, Eastern Chapters - jenny.gast@fshdsociety.org
Kim Shanley - Manager of Events & Community Engagement - kim.shanley@fshdsociety.org
Anna Gilmore - Director of Patient Engagement (Gathering Place Liaison) - anna.gilmore@fshdsociety.org
June Kinoshita - Sr. Director of Research & Patient Engagement (Gathering Place Liaison) - june.kinoshita@fshdsociety.org
Be IN THE KNOW!
When you have an audience, at a chapter gathering, at the beginning of a Gathering Place meeting, during a small group conversation, and all points in between, be armed with some intentional and consistent information to share!
2024 Volunteer Leadership Summit
Welcome to the 2024 Volunteer Leadership Summit hosted in Chicago. Please use the link below to access the Slide Deck for our main presentations.
Volunteer Training Resources
As part of our effort to provide you all the tools, insights, and tips you need to make your work with the FSHD Society more fulfilling and effective, we have provided various training opportunities. Catch up on all you may have missed or re-watch your favorites!
Click HERE to Visit Your Leadership Volunteer Training Series of Recordings.
Volunteers on the Silver Screen!
Amy Bekier, San Diego Chapter and Walk & Roll Leader, and member of the Board of Directors, is the subject of this award-winning short-form documentary, The Reinventor.
Claire Szabo-Cassella, a member of the Arizona Chapter and a leading Walk & Roll team, produced her own short documentary about her life. Check it out: https://filmfreeway.com/RedScooterDiaries
Want to reach out to all of the Chapter Leaders or all of the Walk & Roll Leaders at once, to share ideas, ask for input, or get feedback on a challenge you are facing?
- Make the most of our new Microsoft Team for Volunteer Leaders. Access the Team HERE
From the Team, you can chat with others, share files, access the training calendar, host video meetings, and more. Having trouble getting going? Work with your regional director! - You can email all Chapter Leaders here:
fsh-society-chapter-directors@googlegroups.com - You can email all Walk & Roll Leaders here:
fsh-society-walk-roll-leaders@googlegroups.com - Join the Volunteer Leaders Facebook Group:
https://www.facebook.com/groups/2184658054918993
Resources for You
2023 VOLUNTEER LEADERSHIP SUMMIT: SPARK!
All of the materials are available in the Google Drive HERE, or via the direct file links below:
Access the FINAL Slide Deck: 2023 VLS_MasterSlideDeckFINAL