The Spring 2013 issue of FSH Watch is now available online for your enjoyment. You can access it by clicking here.
Read about recent research advances, including the D4Z4 mouse from Leiden, the collaboration between Glaxo Smith Kline and the University of Washington to find drugs targeting the DUX4 pathway, and the curious link between telomeres and FSHD.
The issue offers inspiring stories about patients who have found creative ways of coping with their FSHD. Kevin Kirby, featured on the cover, has become an advocate raising public awareness. In Stockholm, Calle Eriksson became a “test driver” for an all-terrain motorized wheelchair which has given him back the freedom to explore nature again. Judy Seslowe and Beth Johnston overcame their shyness and fear to produce the FSH Society’s largest fundraising event.
And, it’s dawning on us that being named by Charity Navigator as one of America’s “Ten Charities Worth Watching” is kind of a big deal. This is a great honor for all of us who make up the FSH Society – our staff, Board, the patients, families and friends, and of course you.