We have some good news to share on National Institutes of Health funding for FSHD. As part of the FSH Society’s committee work in Washington, DC, we recently received FY2015 data release on NIH support for the muscular dystrophies and were very pleased to see actual 2015 fiscal year NIH funding support for FSHD research at $8,397,995. We thought you would be too.
It is great to see this number increasing, with $9 million estimated in fiscal years 2016 and 2017. With funding for muscular dystrophies overall at $80 million, the share invested in FSHD has for the first time risen above 10 percent.
With all the great research opportunities in FSHD today, we hope total NIH funding will soon exceed $10 million per year. “I can remember when we started the Society,” recalls Daniel Perez, President and CEO of the FSH Society. “NIH funding for muscular dystrophy overall was just around $10 million per year, with FSHD funding at around $200K.” This all began to change with the MD-CARE Act of 2001, which the FSH Society originated and lobbied hard to pass.
Scroll down below to see the list of FSHD grants funded by NIH in 2015 (click to enlarge the image). You’ll see that the majority of projects received support previously from the FSH Society. This is an example of your donations in action. Our Scientific Advisory Board selects the strongest ideas, which the FSH Society funds so that investigators can generated the data they need in order to win larger NIH grants.