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Webinar: Psychological interventions to improve well-being in muscle diseases

Home / Living with FSHD / Health and Medicine / Webinar: Psychological interventions to improve well-being in muscle diseases

Posted on: Mar 26, 2018

https://www.youtube.com/watch?v=s67L70Acul4

Note: The video will be posted only until May 31, 2018.
Download Chris Graham’s Slide Deck.

In this talk, focusing mostly on his group’s work in muscle disorders, Chris Graham, PhD, DPsychol, describes some of the findings from studies looking at what coping methods seem to be beneficial for well-being. He then describes some psychological treatment methods that could be applied to help people live well with chronic diseases. He focuses mostly on Acceptance and Commitment Therapy (ACT), the psychological training method/treatment that is currently being tested as a means to improve well-being in muscle disorders – a randomised controlled trial led by King’s College London.

Dr. Graham is a clinical psychologist and research fellow at the University of Leeds, England. His research mainly involves: 1) understanding whether different ways of coping with chronic illness can explain good (and bad) well-being.; 2) Developing psychological training or treatments to improve well-being in chronic diseases. Through his work with people living with muscle disorders he became interested in newer types of psychotherapy which involve mindfulness, and living according to one’s own values (Acceptance and Commitment Therapy [ACT]). At present his research group is involved in several randomised clinical trials of these approaches, comprising: ACT for improving quality of life and mood in muscle disorders; ACT for improving quality of life and mood in ALS and ACT for improving medication adherence (life expectancy) in breast cancer.In this talk, focusing mostly on his group’s work in muscle disorders, Dr Graham will describe some of the findings from studies looking at what coping methods seem to be beneficial for well-being. He will then describe some psychological treatment methods that could be applied to help people live well with chronic diseases. He will focus mostly on Acceptance and Commitment Therapy (ACT), the psychological training method/treatment that is currently being tested as a means to improve well-being in muscle disorders – a randomised controlled trial led by King’s College London. He is happy to answer questions related to ACT and/or clinical psychology and psychotherapy in general.

Our moderator, Kent Drescher, PhD, is a psychologist at the National Center for PTSD and a co-organizer of the FSH Society’s Bay Area member network.

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Filed Under: Health and Medicine, Living with FSHD, Mental Health

Comments

  1. Kimberley Wilson says

    April 11, 2018 at 4:14 pm

    My son has muscler dystrophy but doctors don’t know which one he has as think it’s a rare form and we are frustrated especially my son as can not receive treatment and in constant pain

    Reply

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