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Three European centers have agreed to collaborate with the FSHD Clinical Trial Research Network on its NIH UO1 grant-funded projects, notably ReSOLVE. In doing so, they join eight US members of the CTRN.
Funding sources for the network and the studies running on the network include: the FSH Society, Muscular Dystrophy Association, private philanthropy, National Institute of Neurological Disorders and Stroke, Friends of FSH Research, Institute of Myology Association, and the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS).
Patients who wish to volunteer or be considered for future research studies and clinical trials are encouraged to contact a site that is conveniently located for them. Here are the FSHD CTRN and collaborating sites, with the site principal investigators:
This is great news. Expanding the CTRN into Europe will include a more diverse population of patients for studies and trials along with attracting a larger number of patients for studies like ReSOLVE and future drug trials.