Randolf, MA – April 25, 2022 – By meeting key standards of board oversight, finances, results reporting and fundraising appeals, the FSHD Society achieved accreditation by the BBB Wise Giving Alliance. This accreditation signifies that the FSHD Society is deserving of donor trust as they are a well-run nonprofit organization.
“We are thrilled to have received this important designation. We value the support that our donors give us and work diligently to always remain worthy of their trust,” says Mark Stone, CEO of the FSHD Society, “The FSHD Society is deeply committed to working with ingenuity and integrity to accelerate research leading to treatments and a cure for FSHD muscular dystrophy. Work that is only made possible through the tremendous support of so many.”
The BBB Wise Giving Alliance (BBB WGA) is the nation’s only comprehensive charity evaluator, assisting donors in making sound giving decisions. Donors know they can trust a charity if it is accredited by the BBB WGA. Their broad standards go beyond what the law requires and dives deeper than other charity monitoring organizations. Each BBB WGA charity report process involves a rigorous review using 20 holistic BBB Charity Standards, interaction with charity officials about corrective actions needed to address deficiencies, and quality control measures to assure report accuracy. Thousands of charities have reports available to the public at Give.org.
“The public can be assured that every charity evaluation is completed with careful, objective analysis of charity information,” says Art Taylor, president and CEO of the BBB Wise Giving Alliance, “By achieving accreditation, the FSHD Society has earned public trust having demonstrated its commitment to sound governance, transparency and achieving its mission.”
The FSHD Society has transformed the landscape for FSHD research and is committed to making sure that no one faces this disease alone.
ABOUT FSHD SOCIETY
The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. Over the past 30 years, the organization has catalyzed major advancements and worked to accelerate the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD.
ABOUT BBB WISE GIVING ALLIANCE
BBB Wise Giving Alliance (BBB WGA) is a standards-based charity evaluator that seeks to verify the trustworthiness of nationally-soliciting charities by completing rigorous evaluations based on 20 holistic standards that address charity governance, effectiveness reporting, finances, fund raising, appeal accuracy, and other issues. National charity reports are produced by the BBB WGA and local charity reports are produced by local Better Business Bureaus – all reports are available at Give.org.