Did you know we have an active group of international FSHD advocacy leaders, the World FSHD Alliance? We meet every three months to discuss global strategies. The members bring impressive skills and backgrounds to this task and often share information that we think is valuable to all. In this example, Ricardo from FSHD Spain gave a presentation that provides an overview of ankle-foot orthoses (AFOs), a common type of orthoses used by people with FSHD to prevent drop foot. We were surprised by the many varieties available. Our thanks to Ricardo and also FSHD Argentina member Nahuel Bulian, who shared their slide deck and images (2022 Alliance Q1 Meeting AFOs).
Thank you. This was very informative and I appreciate the work you put in to research this topic.