Alberta Chapter FSHD Canada

Welcome to the Alberta Chapter!

Thank you for visiting the Alberta, Canada Chapter of the FSHD Canada Foundation!

FSHD Canada Foundation has partnered with the FSHD Society to support and grow the FSHD Communities across Canada with the shared goal to deliver treatments and a cure for FSH Muscular Dystrophy.

We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

The goals of the Chapter Program here in Alberta are to:

  • Increase awareness and educate families throughout Alberta.
  • Help build connections among patients, care givers, health care providers and others affected by this disease.
  • Harness the power of those shared connections allowing us all to gain strength, support and encouragement as we push forward in finding a cure for FSHD.
  • Last but not least let’s HAVE SOME FUN while we accomplish these goals!
Walk and Roll to Cure FSHD

Stay tuned for our First Annual Alberta Walk & Roll to Cure FSHD!

 

Want to know more about the Walk & Roll? Learn More

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To contact us directly, please email: AlbertaChapter@fshdsociety.org

Please join us! Simply fill out the form in the sidebar to become a member of the Alberta chapter

Upcoming Events

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FSHD Radio: Community Profiles

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Tuesday, April 11th On the 2nd Tuesday of every month, we will bring you a new episode of FSHD Radio: Community Profiles. This long-form show includes profiles of the FSHD... Read More »

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Karen Camarta

Karen Camarta

Chapter Co-Director

Welcome! Karen Camarta here, excited to join my sister Jennie in forming the Alberta Chapter of FSHD Society.

With FSHD in my paternal family, it was easy to see the signs in my twenties that I too had joined the ranks, though I have been fortunate to-date with minor symptoms.

I have a beautiful daughter and amazing husband. While I am happy to call Calgary my home, my love of travel gets me out of my house as much as possible, out to discover nature and culture throughout the world.

Looking forward to this next adventure and to meet you!

Jennie Camarta

Jennie Camarta

Chapter Co-Director

Hello! I'm so happy you're here! I'm Jennie Camarta and, along with my sister Karen, we run the Alberta Chapter of the FSHD Society.

While I've pretty much always known I've had FSHD, I was officially diagnosed in my early twenties. However, despite my condition, I'm fortunate to lead a very active lifestyle. My passions in life are getting lost in the gorgeous Rocky Mountains for days at a time, travelling to unique spots all over the world, and, most of all, spending time with my insanely wonderful nieces and nephews.

I've been married to my incredibly supportive partner Nick for close to 17 years. We live in Calgary, and have two pretty cute senior kitties. When I'm not hiking or planning my next trip somewhere, I'm working as a Registered Nurse with the veteran population.

Don't hesitate to reach out, and I look forward to getting to know you!

Stay Informed on Chapter Activities!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

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