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FSHD Society Radio with guest Carden Wyckoff
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Call-in number: (262) 422-6369 Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's…
Find out more »FSHD Society Sequester Camp
During this time of uncertainty, we want you to know you are very much in our thoughts. Many of you already feel isolated, and now it is even harder to get out, or for others to visit. The fragile webs of support you’ve built to help you get by are being shredded. We care about what’s happening and are doing everything we can to help and strengthen the bonds of community. Together, we will get through this turbulent time. Starting…
Find out more »FSHD Connecticut Connections
Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! Join from your computer or tablet: https://zoom.us/j/442453571 Or iPhone one-tap : +16699006833,,442453571# Or by Telephone: 669-900-6833, Meeting ID: 442 453 571 RSVP to Kathy at CTChapter@fshdsociety.org
Find out more »Atlanta Chapter Virtual Meeting
Please join us for a Virtual Chapter meeting on Friday, April 3rd! We are thrilled to announce that we will be joined by special guest speaker, Dr. Nicholas Johnson from VCU! He will be speaking to the group about clinical trials: their significance, how to get involved, and what's happening in the field right now. Read more about Dr. Johnson below! Login to the meeting here: https://zoom.us/j/660547169 Or, you can dial in by phone: 646-558-8656; Meeting ID: 660 547 169…
Find out more »CANCELLED: Tampa Chapter Meeting
In light of COVID-19 concerns, we will be cancelling the April meeting of the Tampa chapter. We encourage you to join in some upcoming virtual events: Join the Society's weekly online check-in (Sequester camp!): Learn more here! April 3rd virtual meeting of the Atlanta Chapter (Info & RSVP here!) We will be back together soon - and we wish you health, safety, and comfort in the meantime! We hope to "see" you, virtually, very soon! ~Jane Pollock, Tampa Chapter Director…
Find out more »Western PA Chapter Meeting: POSTPONED
Please join us for the upcoming Western PA Chapter meeting, April 5th 2020, at Carnegie Library of Pittsburgh - Squirrel Hill!
Find out more »FSHD Radio Sequester Camp
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can…
Find out more »FSHD Society Sequester Camp
During this time of uncertainty, we want you to know you are very much in our thoughts. Many of you already feel isolated, and now it is even harder to get out, or for others to visit. The fragile webs of support you’ve built to help you get by are being shredded. We care about what’s happening and are doing everything we can to help and strengthen the bonds of community. Together, we will get through this turbulent time. Starting…
Find out more »FSHD Radio Sequester Camp
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can…
Find out more »FSHD Society Sequester Camp
During this time of uncertainty, we want you to know you are very much in our thoughts. Many of you already feel isolated, and now it is even harder to get out, or for others to visit. The fragile webs of support you’ve built to help you get by are being shredded. We care about what’s happening and are doing everything we can to help and strengthen the bonds of community. Together, we will get through this turbulent time. Starting…
Find out more »Southwest Florida Virtual Chapter meeting
Please join us on Sunday, April 19th for a virtual chapter meeting! This will be a great opportunity to regroup and check in as a Chapter. We are still formalizing our agenda, but topics will include: Introductions & Checking in with each other What's new/updates from the FSHD Society Educational topic tbd (requests & suggestions welcome!) Q&A Log into the meeting here: https://zoom.us/j/8746919235 Please note: Out of an abundance of caution, the concert committee has opted to postpone the "Pitching…
Find out more »FSHD Radio Sequester Camp
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can…
Find out more »FSHD Society Sequester Camp
During this time of uncertainty, we want you to know you are very much in our thoughts. Many of you already feel isolated, and now it is even harder to get out, or for others to visit. The fragile webs of support you’ve built to help you get by are being shredded. We care about what’s happening and are doing everything we can to help and strengthen the bonds of community. Together, we will get through this turbulent time. Starting…
Find out more »FSHD Radio Sequester Camp
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT We're In This Together During this time of self-isolation because of the covid-19 crisis, it’s important to stay connected. Join FSHD Radio show host Tim Hollenback every Wednesday evening on Facebook Live for an open-ended conversation about whatever is on your mind. Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can…
Find out more »FSHD Society Sequester Camp
During this time of uncertainty, we want you to know you are very much in our thoughts. Many of you already feel isolated, and now it is even harder to get out, or for others to visit. The fragile webs of support you’ve built to help you get by are being shredded. We care about what’s happening and are doing everything we can to help and strengthen the bonds of community. Together, we will get through this turbulent time. Starting…
Find out more »FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It's a great community event!
Find out more »FSHD Society Sequester Camp
During this time of uncertainty, we want you to know you are very much in our thoughts. Many of you already feel isolated, and now it is even harder to get out, or for others to visit. The fragile webs of support you’ve built to help you get by are being shredded. We care about what’s happening and are doing everything we can to help and strengthen the bonds of community. Together, we will get through this turbulent time. Starting…
Find out more »FSHD Connecticut Connections
Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! Join from your computer or tablet: https://zoom.us/j/442453571 Or iPhone one-tap : +16699006833,,442453571# Or by Telephone: 669-900-6833, Meeting ID: 442 453 571 RSVP to Kathy at CTChapter@fshdsociety.org
Find out more »Colorado Chapter Meeting
Join us for our next Colorado Chapter Meeting! Saturday May 9th, 11 am - 1 pm Sam Gary Library Meeting Room 2961 Rosyln St. Denver, CO. 80238 Or participate virtually at https://ucdenver.zoom.us/j/5269799585 Please note that we are closely monitoring the COVID-19 situation in Colorado and will decide whether to cancel the in-person meeting and go fully virtual as the meeting date approaches. Stay tuned! Could you use a little SUPPORT?? Living through the daily challenges of FSHD can be emotionally…
Find out more »Webinar on stem cell research with Dr. Rita Perlingeiro
Dr. Rita Perlingeiro is Associate Professor of Medicine within the Lillehei Heart Institute at the University of Minnesota. Her primary research interests include understanding the molecular mechanisms controlling lineage-specific differentiation of pluripotent stem cells, and applying this information to efficiently generate tissue-specific stem/progenitor cells endowed with in vivo regenerative potential. Her work has potential applications in muscular dystrophy research and future therapies. She has received several awards and honors and has served as an expert reviewer and publisher for several…
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