Lighting the Way to a Cure

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Los Angeles Virtual Chapter Meeting

Aug 15 @ 10:30 am - 11:30 am
Los Angeles, Los Angeles,

Los Angeles Virtual Chapter Meeting Saturday, August 15, 2020 10:30am-11:30am Pacific Time Zone Please join us Virtually LOG IN HERE Password: 059647 This will be a great way to share resources, catch up and talk about the upcoming Walk & Roll on September 12th!

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Bay Area Virtual Chapter Meeting

Aug 16 @ 1:00 pm - 3:00 pm
Bay Area Virtual, San Francisco, CA United States

Bay Area Virtual Chapter Meeting Sunday, August 16, 2020 1pm-3pm Pacific Time Please join us Virtually LOG IN HERE Password: 091299 Please join us on Sunday, August 16th for a virtual meeting with the Bay Area Chapter! In addition to being a great opportunity to catch up and talk about the upcoming Walk & Roll in September we will hear from Matt Herzog of Perkin-Elmer who will share information about their genetic test for FSHD. We hope you can join us! ~Sue…

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FSHD Society Radio on Exercise and Fitness

Aug 19 @ 8:00 pm - 9:00 pm
Facebook Live, United States
FSHD Radio Live on Facebook

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening.  Our guests tonight are our favorite exercise mavens, Bill Herzberg and Mitch Wade. They'll be sharing their experiences with workouts that have improved Bill's strength, range of motion, and endurance. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether…

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FSHD University Logo

Webinar on scapular stabilization surgery

Aug 20 @ 1:00 pm - 2:00 pm
Zoom Web Conference, https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571 United States

Dr. Anthony Romeo NOTE CHANGE OF DATE. Join us for our webinar on scapular stabilization surgery at 1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT. One of the classic symptoms of FSHD is "scapular winging." The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel's wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works…

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FSHD Society Radio on scapular surgery

Aug 26 @ 8:00 pm - 9:00 pm
Facebook Live, United States
FSHD Radio Live on Facebook

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Tonight's guest is Dr. Anthony Romeo, a distinguished orthopedic surgeon who is one of the leading experts on surgery to stabilize the shoulder blade (scapula) in individuals with FSH muscular dystrophy. He was last week's FSHD University webinar speaker and is available tonight to answer your questions! Lifelong interests in science and sports have led Dr.…

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FSHD Society Radio

Sep 2 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every week that begins at 8:00 pm on Wednesday, repeating until Nov 25, 2020

Facebook Live, United States
FSHD Radio Live on Facebook

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…

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FSHD Connecticut Connections

Sep 3 @ 7:00 pm - 8:30 pm
|Recurring Event (See all)

An event every month that begins at 7:00 pm on day First of the month, repeating until Dec 31, 2020

Connecticut Virtual Meeting, https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571 CT United States

Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! JOIN US from your computer or tablet! If needed, passcode is: CTConnect Or iPhone one-tap : +16699006833,,442453571# Or by Telephone: 669-900-6833, Meeting ID: 442 453 571 RSVP to Kathy at CTChapter@fshdsociety.org

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FSHD Society Radio

Sep 9 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every week that begins at 8:00 pm on Wednesday, repeating until Nov 25, 2020

Facebook Live, United States
FSHD Radio Live on Facebook

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…

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Arizona Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Arizona, AZ United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 Arizona Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Directors, Landon & Marie Morrell, with any questions! They can be reached at ArizonaChapter@FSHDSociety.org We look forward to "seeing" you on September 12th!

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Atlanta Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Atlanta, GA, Atlanta, GA United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 Atlanta Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Jack Gerblick, with any questions! He can be reached at AtlantaChapter@FSHDSociety.org We look forward to "seeing" you on September 12th!

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Bay Area Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Bay Area, San Francisco, CA United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 Bay Area Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Directors, Kent & Sue Drescher, with any questions! They can be reached at BayAreaChapter@FSHDSociety.org We look forward to "seeing" you on the 12th!

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Central Texas Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Texas, TX United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 Central Texas Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Questions? Please reach out to the Chapter Director, Rachel Sartin at CenTexChapter@FSHDSociety.org, Or the Fundraising Leader, Ashely Bryan at ashleybryan1@gmail.com We look forward to "seeing" you on September 12th!

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Chicagoland Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Chicago, IL United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 Chicagoland Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Dave Lukas, with any questions! He can be reached at ChicagoChapter@fshdsociety.org We look forward to "seeing" you on September 12th!

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Colorado Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Colorado, CO United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 Colorado Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk Leader, Anne Babcock, with any questions! She can be reached at COWnR@fshdsociety.org We look forward to "seeing" you on September 12th!

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Columbus Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Columbus, OH United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 Columbus Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Susan Aumiller, with any questions! She can be reached at ColumbusChapter@fshdsociety.org We look forward to "seeing" you on September 12th!

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Connecticut Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
connecticut, CT United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 Connecticut Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk Leader, Peter "Pogo" Pogozelski , with any questions! He can be reached at CTWnR@fshdsociety.org We look forward to "seeing" you on September 12th!

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East Tennessee Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
East Tennessee, knoxville, TN United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 East Tennessee Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Jennie Harriman, with any questions! She can be reached at EastTNChapter@fshdsociety.org We look forward to “seeing” you on September 12th!

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Greater Philadelphia Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Greater Philadelphia, Philadelphia, PA United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 Greater Philly Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk & Roll Leaders, Taylor & Colin Quigg, with any questions! They can be reached at PhillyWnR@fshdsociety.org We look forward to “seeing” you on September 12th!

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Idaho Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Idaho, ID United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 Idaho Walk & Roll to Cure FSHD has gone VIRTUAL We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Minette Hale, with any questions! She can be reached at IdahoChapter@fshdsociety.org We look forward to "seeing" you on September 12th!

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Kansas City Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Kansas City, Kansas City, MO United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 Kansas City Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Kiley Higgs, with any questions! She can be reached at KansasCityChapter@FSHDSociety.org We look forward to "seeing" you on September 12th!

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Los Angeles Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Los Angeles, Los Angeles, CA United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 Los Angeles Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk & Roll Leader, Graciela Saunders, with any questions! She can be reached at gracielanoels@gmail.com We look forward to "seeing" you on September 12th!

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Mid-Atlantic Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Mid-Atlantic, DC United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 Mid-Atlantic Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk Leaders, Bobby Krasnansky & Rachael Schaffer, with any questions! They can be reached at robert.krasnansky@gmail.com We look forward to "seeing" you on September 12th!  

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New England Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
New England, Boston, MA United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 New England Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Fundraising Leader, Lexi Pappas, with any questions! She can be reached at alexipappas19@gmail.com We look forward to “seeing” you on September 12th!

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North Carolina Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
North Carolina, NC United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 North Carolina Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Meredith Huml, with any questions! She can be reached at NCChapter@FSHDSociety.org We look forward to "seeing" you on September 12th!

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Pacific Northwest Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Seattle, Washington, Seattle, WA United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 Pacific Northwest Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk & Roll Leader, Selina Lai, with any questions! She can be reached at laistar@verizon.net We look forward to "seeing" you on September 12th!

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Philadelphia Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Philadelphia, PA United States
Virtual Walk Roll to Cure FSHD

Please mark your calendars: The 2020 Greater Philadelphia Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk Leaders,  Taylor and Colin Quigg, with any questions! They can be reached at PhillyWnR@FSHDSociety.org We look forward to "seeing" you on September 12th!

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St. Louis Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
St. Louis, MO United States
Virtual Walk Roll for FSHD

Please mark your calendars: The 2020 St. Louis Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Marsha Sverdrup, with any questions! She can be reached at StLouisChapter@fshdsociety.org We look forward to "seeing" you on September 12th!  

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South Carolina Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
South Carolina, SC United States
Virtual Walk Roll for FSHD

Please mark your calendars: The 2020 South Carolina Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Frank Hanley, with any questions! He can be reached at SouthCarolinaChapter@fshdsociety.org We look forward to “seeing” you on September 12th!

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Southwest Florida Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Southwest Florida, Naples, FL United States
Virtual Walk Roll for FSHD

Please mark your calendars: The 2020 Southwest Florida Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Heloise Hoffmann, with any questions! She can be reached at SWFloridaChapter@FSHDSociety.org We look forward to "seeing" you on September 12th!

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Tampa Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Tampa, Tampa, FL United States
Virtual Walk Roll for FSHD

Please mark your calendars: The 2020 Tampa Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Jane Pollock, with any questions! She can be reached at TampaChapter@fshdsociety.org We look forward to "seeing" you on September 12th!

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Utah Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
utah, UT United States
Virtual Walk Roll for FSHD

Please mark your calendars: The 2020 Utah Walk & Roll to Cure FSHD has gone VIRTUAL! We hope to see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Allison Calder, with any questions! She can be reached at UtahChapter@fshdsociety.org We look forward to "seeing" you on September 12th!

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Wisconsin Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Wisconsin, WI United States
Virtual Walk Roll for FSHD

Please mark your calendars: The 2020 Wisconsin Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Tim Hollenback, with any questions! He can be reached at WisconsinChapter@FSHDSociety.org We look forward to "seeing" you on September 12th!

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Virtual Walk Roll to Cure FSHD

National Virtual Walk & Roll to Cure FSHD

Sep 12 @ 10:00 am - 11:00 am
Facebook Live, United States

The National Virtual Walk & Roll to Cure FSHD is the only national event focused solely on funding progress for FSHD. Led entirely by dedicated volunteers, supported by staff, these events take place all over the nation. Find your local Walk & Roll HERE! No local Chapter-Led Walk & Roll near you?  Don't worry! You can still be a part of this incredible movement by selecting and registering for the National Virtual Walk & Roll.

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FSHD Society Radio

Sep 16 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every week that begins at 8:00 pm on Wednesday, repeating until Nov 25, 2020

Facebook Live, United States
FSHD Radio Live on Facebook

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…

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FSHD Society Radio

Sep 23 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every week that begins at 8:00 pm on Wednesday, repeating until Nov 25, 2020

Facebook Live, United States
FSHD Radio Live on Facebook

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…

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FSHD Society Radio

Sep 30 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every week that begins at 8:00 pm on Wednesday, repeating until Nov 25, 2020

Facebook Live, United States
FSHD Radio Live on Facebook

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…

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FSHD Connecticut Connections

Oct 1 @ 7:00 pm - 8:30 pm
|Recurring Event (See all)

An event every month that begins at 7:00 pm on day First of the month, repeating until Dec 31, 2020

Connecticut Virtual Meeting, https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571 CT United States

Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! JOIN US from your computer or tablet! If needed, passcode is: CTConnect Or iPhone one-tap : +16699006833,,442453571# Or by Telephone: 669-900-6833, Meeting ID: 442 453 571 RSVP to Kathy at CTChapter@fshdsociety.org

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FSHD Society Radio

Oct 7 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every week that begins at 8:00 pm on Wednesday, repeating until Nov 25, 2020

Facebook Live, United States
FSHD Radio Live on Facebook

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…

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FSHD Society Radio

Oct 14 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every week that begins at 8:00 pm on Wednesday, repeating until Nov 25, 2020

Facebook Live, United States
FSHD Radio Live on Facebook

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…

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FSHD University Logo

Webinar – Accelerating Therapy Development: The Patient Community Role

Oct 15 @ 1:00 pm - 2:00 pm
Zoom Web Conference, https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571 United States

This month's webinar presenter is Molly White, Vice President, Medical Communications & Advocacy at Dyne Therapeutics. Molly brings a unique perspective on the impact of the FSHD community's role in therapy development. She previously served as chief executive officer of Myotonic, an organization dedicated to advancing research and enhancing the quality of life of people living with myotonic dystrophy. In that role, she led strategic direction and administrative oversight for the comprehensive programmatic and fundraising efforts of the foundation and…

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FSHD Society Radio

Oct 21 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every week that begins at 8:00 pm on Wednesday, repeating until Nov 25, 2020

Facebook Live, United States
FSHD Radio Live on Facebook

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…

Find out more »

FSHD Society Radio

Oct 28 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every week that begins at 8:00 pm on Wednesday, repeating until Nov 25, 2020

Facebook Live, United States
FSHD Radio Live on Facebook

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…

Find out more »

FSHD Society Radio

Nov 4 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every week that begins at 8:00 pm on Wednesday, repeating until Nov 25, 2020

Facebook Live, United States
FSHD Radio Live on Facebook

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…

Find out more »

FSHD Connecticut Connections

Nov 5 @ 7:00 pm - 8:30 pm
|Recurring Event (See all)

An event every month that begins at 7:00 pm on day First of the month, repeating until Dec 31, 2020

Connecticut Virtual Meeting, https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571 CT United States

Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! JOIN US from your computer or tablet! If needed, passcode is: CTConnect Or iPhone one-tap : +16699006833,,442453571# Or by Telephone: 669-900-6833, Meeting ID: 442 453 571 RSVP to Kathy at CTChapter@fshdsociety.org

Find out more »

FSHD Society Radio

Nov 11 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every week that begins at 8:00 pm on Wednesday, repeating until Nov 25, 2020

Facebook Live, United States
FSHD Radio Live on Facebook

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…

Find out more »

FSHD Society Radio

Nov 18 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every week that begins at 8:00 pm on Wednesday, repeating until Nov 25, 2020

Facebook Live, United States
FSHD Radio Live on Facebook

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…

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FSHD University Logo

Webinar – The Utah FSHD Study

Nov 19 @ 1:00 pm - 2:00 pm
Zoom Web Conference, https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571 United States

Russell Butterfield, MD PhD This month's webinar shines a spotlight on an ambitious FSHD genetic study led by Russell Butterfield, MD, PhD and Bob Weiss, PhD of the University of Utah. One of the landmark studies in FSHD involved a 1950 publication involving more than 1200 members of an extended Utah family affected by FSH muscular dystrophy and traced back to a pioneer founder born in 1775.  Dr. Butterfield will introduce us to this important FSHD family and the work…

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FSHD Society Radio

Nov 25 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every week that begins at 8:00 pm on Wednesday, repeating until Nov 25, 2020

Facebook Live, United States
FSHD Radio Live on Facebook

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…

Find out more »

FSHD Society Radio

Dec 2 @ 8:00 pm - 9:00 pm
|Recurring Event (See all)

An event every month that begins at 8:00 pm on day First of the month, repeating until Dec 2, 2020

Facebook Live, United States
FSHD Radio Live on Facebook

Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Call Tim with your questions…

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FSHD Connecticut Connections

Dec 3 @ 7:00 pm - 8:30 pm
|Recurring Event (See all)

An event every month that begins at 7:00 pm on day First of the month, repeating until Dec 31, 2020

Connecticut Virtual Meeting, https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571 CT United States

Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! JOIN US from your computer or tablet! If needed, passcode is: CTConnect Or iPhone one-tap : +16699006833,,442453571# Or by Telephone: 669-900-6833, Meeting ID: 442 453 571 RSVP to Kathy at CTChapter@fshdsociety.org

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Western PA Drum & Roll

Apr 18, 2021 @ 1:00 pm - 3:00 pm
Andrew Carnegie Free Library and Music Hall, 300 Beechwood Avenue
Carnegie, PA 15106 United States

Please mark your calendars: The 2021 Western PA Drum & Roll to Cure FSHD has been scheduled! We hope to see you on Sunday, April 18, 2021 Please reach out to the Chapter Director, Mark Christman, with any questions! He can be reached at WesternPAChapter@fshdsociety.org We look forward to seeing you on the 18th!

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