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Los Angeles Virtual Chapter Meeting
Los Angeles Virtual Chapter Meeting Saturday, August 15, 2020 10:30am-11:30am Pacific Time Zone Please join us Virtually LOG IN HERE Password: 059647 This will be a great way to share resources, catch up and talk about the upcoming Walk & Roll on September 12th!
Find out more »Bay Area Virtual Chapter Meeting
Bay Area Virtual Chapter Meeting Sunday, August 16, 2020 1pm-3pm Pacific Time Please join us Virtually LOG IN HERE Password: 091299 Please join us on Sunday, August 16th for a virtual meeting with the Bay Area Chapter! In addition to being a great opportunity to catch up and talk about the upcoming Walk & Roll in September we will hear from Matt Herzog of Perkin-Elmer who will share information about their genetic test for FSHD. We hope you can join us! ~Sue…
Find out more »FSHD Society Radio on Exercise and Fitness
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Our guests tonight are our favorite exercise mavens, Bill Herzberg and Mitch Wade. They'll be sharing their experiences with workouts that have improved Bill's strength, range of motion, and endurance. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether…
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Webinar on scapular stabilization surgery
Dr. Anthony Romeo NOTE CHANGE OF DATE. Join us for our webinar on scapular stabilization surgery at 1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT. One of the classic symptoms of FSHD is "scapular winging." The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel's wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works…
Find out more »FSHD Society Radio on scapular surgery
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Tonight's guest is Dr. Anthony Romeo, a distinguished orthopedic surgeon who is one of the leading experts on surgery to stabilize the shoulder blade (scapula) in individuals with FSH muscular dystrophy. He was last week's FSHD University webinar speaker and is available tonight to answer your questions! Lifelong interests in science and sports have led Dr.…
Find out more »FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…
Find out more »FSHD Connecticut Connections
Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! JOIN US from your computer or tablet! If needed, passcode is: CTConnect Or iPhone one-tap : +16699006833,,442453571# Or by Telephone: 669-900-6833, Meeting ID: 442 453 571 RSVP to Kathy at CTChapter@fshdsociety.org
Find out more »FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…
Find out more »Arizona Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Arizona Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Directors, Landon & Marie Morrell, with any questions! They can be reached at ArizonaChapter@FSHDSociety.org We look forward to "seeing" you on September 12th!
Find out more »Atlanta Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Atlanta Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Jack Gerblick, with any questions! He can be reached at AtlantaChapter@FSHDSociety.org We look forward to "seeing" you on September 12th!
Find out more »Bay Area Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Bay Area Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Directors, Kent & Sue Drescher, with any questions! They can be reached at BayAreaChapter@FSHDSociety.org We look forward to "seeing" you on the 12th!
Find out more »Central Texas Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Central Texas Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Questions? Please reach out to the Chapter Director, Rachel Sartin at CenTexChapter@FSHDSociety.org, Or the Fundraising Leader, Ashely Bryan at ashleybryan1@gmail.com We look forward to "seeing" you on September 12th!
Find out more »Chicagoland Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Chicagoland Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Dave Lukas, with any questions! He can be reached at ChicagoChapter@fshdsociety.org We look forward to "seeing" you on September 12th!
Find out more »Colorado Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Colorado Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk Leader, Anne Babcock, with any questions! She can be reached at COWnR@fshdsociety.org We look forward to "seeing" you on September 12th!
Find out more »Columbus Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Columbus Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Susan Aumiller, with any questions! She can be reached at ColumbusChapter@fshdsociety.org We look forward to "seeing" you on September 12th!
Find out more »Connecticut Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Connecticut Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk Leader, Peter "Pogo" Pogozelski , with any questions! He can be reached at CTWnR@fshdsociety.org We look forward to "seeing" you on September 12th!
Find out more »East Tennessee Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 East Tennessee Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Jennie Harriman, with any questions! She can be reached at EastTNChapter@fshdsociety.org We look forward to “seeing” you on September 12th!
Find out more »Greater Philadelphia Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Greater Philly Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk & Roll Leaders, Taylor & Colin Quigg, with any questions! They can be reached at PhillyWnR@fshdsociety.org We look forward to “seeing” you on September 12th!
Find out more »Idaho Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Idaho Walk & Roll to Cure FSHD has gone VIRTUAL We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Minette Hale, with any questions! She can be reached at IdahoChapter@fshdsociety.org We look forward to "seeing" you on September 12th!
Find out more »Kansas City Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Kansas City Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Kiley Higgs, with any questions! She can be reached at KansasCityChapter@FSHDSociety.org We look forward to "seeing" you on September 12th!
Find out more »Los Angeles Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Los Angeles Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk & Roll Leader, Graciela Saunders, with any questions! She can be reached at gracielanoels@gmail.com We look forward to "seeing" you on September 12th!
Find out more »Mid-Atlantic Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Mid-Atlantic Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk Leaders, Bobby Krasnansky & Rachael Schaffer, with any questions! They can be reached at robert.krasnansky@gmail.com We look forward to "seeing" you on September 12th!
Find out more »New England Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 New England Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Fundraising Leader, Lexi Pappas, with any questions! She can be reached at alexipappas19@gmail.com We look forward to “seeing” you on September 12th!
Find out more »North Carolina Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 North Carolina Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Meredith Huml, with any questions! She can be reached at NCChapter@FSHDSociety.org We look forward to "seeing" you on September 12th!
Find out more »Pacific Northwest Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Pacific Northwest Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk & Roll Leader, Selina Lai, with any questions! She can be reached at laistar@verizon.net We look forward to "seeing" you on September 12th!
Find out more »Philadelphia Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Greater Philadelphia Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Walk Leaders, Taylor and Colin Quigg, with any questions! They can be reached at PhillyWnR@FSHDSociety.org We look forward to "seeing" you on September 12th!
Find out more »St. Louis Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 St. Louis Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Marsha Sverdrup, with any questions! She can be reached at StLouisChapter@fshdsociety.org We look forward to "seeing" you on September 12th!
Find out more »South Carolina Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 South Carolina Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Frank Hanley, with any questions! He can be reached at SouthCarolinaChapter@fshdsociety.org We look forward to “seeing” you on September 12th!
Find out more »Southwest Florida Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Southwest Florida Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Heloise Hoffmann, with any questions! She can be reached at SWFloridaChapter@FSHDSociety.org We look forward to "seeing" you on September 12th!
Find out more »Tampa Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Tampa Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Jane Pollock, with any questions! She can be reached at TampaChapter@fshdsociety.org We look forward to "seeing" you on September 12th!
Find out more »Utah Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Utah Walk & Roll to Cure FSHD has gone VIRTUAL! We hope to see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Allison Calder, with any questions! She can be reached at UtahChapter@fshdsociety.org We look forward to "seeing" you on September 12th!
Find out more »Wisconsin Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Wisconsin Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Tim Hollenback, with any questions! He can be reached at WisconsinChapter@FSHDSociety.org We look forward to "seeing" you on September 12th!
Find out more »National Virtual Walk & Roll to Cure FSHD
The National Virtual Walk & Roll to Cure FSHD is the only national event focused solely on funding progress for FSHD. Led entirely by dedicated volunteers, supported by staff, these events take place all over the nation. Find your local Walk & Roll HERE! No local Chapter-Led Walk & Roll near you? Don't worry! You can still be a part of this incredible movement by selecting and registering for the National Virtual Walk & Roll.
Find out more »FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…
Find out more »FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…
Find out more »FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…
Find out more »FSHD Connecticut Connections
Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! JOIN US from your computer or tablet! If needed, passcode is: CTConnect Or iPhone one-tap : +16699006833,,442453571# Or by Telephone: 669-900-6833, Meeting ID: 442 453 571 RSVP to Kathy at CTChapter@fshdsociety.org
Find out more »FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…
Find out more »FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…
Find out more »Webinar – Accelerating Therapy Development: The Patient Community Role
This month's webinar presenter is Molly White, Vice President, Medical Communications & Advocacy at Dyne Therapeutics. Molly brings a unique perspective on the impact of the FSHD community's role in therapy development. She previously served as chief executive officer of Myotonic, an organization dedicated to advancing research and enhancing the quality of life of people living with myotonic dystrophy. In that role, she led strategic direction and administrative oversight for the comprehensive programmatic and fundraising efforts of the foundation and…
Find out more »FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…
Find out more »FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…
Find out more »FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…
Find out more »FSHD Connecticut Connections
Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! JOIN US from your computer or tablet! If needed, passcode is: CTConnect Or iPhone one-tap : +16699006833,,442453571# Or by Telephone: 669-900-6833, Meeting ID: 442 453 571 RSVP to Kathy at CTChapter@fshdsociety.org
Find out more »FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…
Find out more »FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…
Find out more »Webinar – The Utah FSHD Study
Russell Butterfield, MD PhD This month's webinar shines a spotlight on an ambitious FSHD genetic study led by Russell Butterfield, MD, PhD and Bob Weiss, PhD of the University of Utah. One of the landmark studies in FSHD involved a 1950 publication involving more than 1200 members of an extended Utah family affected by FSH muscular dystrophy and traced back to a pioneer founder born in 1775. Dr. Butterfield will introduce us to this important FSHD family and the work…
Find out more »FSHD Society Radio
9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live every Wednesday evening. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice. You can call Tim at 414-375-2561 or post questions and…
Find out more »FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Call Tim with your questions…
Find out more »FSHD Connecticut Connections
Kathy Senecal and Sarah Pashe invite you to come support, empower, share and network with the FSHD community. This is a monthly meeting that will take place on the first Thursday of each month via Zoom web conference. Patients, caregivers and family members welcome! JOIN US from your computer or tablet! If needed, passcode is: CTConnect Or iPhone one-tap : +16699006833,,442453571# Or by Telephone: 669-900-6833, Meeting ID: 442 453 571 RSVP to Kathy at CTChapter@fshdsociety.org
Find out more »Western PA Drum & Roll
Please mark your calendars: The 2021 Western PA Drum & Roll to Cure FSHD has been scheduled! We hope to see you on Sunday, April 18, 2021 Please reach out to the Chapter Director, Mark Christman, with any questions! He can be reached at WesternPAChapter@fshdsociety.org We look forward to seeing you on the 18th!
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